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@avmcbellar Hi, Tony! Thanks so much for asking if my pain has gone down without my DRG stimulator. The answer is yes, and no. I felt the electricity mostly in my butt cheeks, and that is much better. It got that I could barely sit down, so that is better. However, I still have very odd shin sensations, that I never had before. I assumed that the stimulator was doing that, but not so sure now. Maybe it takes a bit of time for the tissue to settle down. My shins throb and are like fire when I sleep, and I wear ice packs on them to bed. This is either neuropathy pain that has spread to the shins, of just residual pain from the stimulator. If it does not settle down in a few more days, I will call my pain doc. As far as the virtual reality website, I did book mark and look at it. However, I realized that it probably would not work too well for me, because I was born without depth perception! Those 3D movies that are made, I cannot see the depth. So I doubt the virtual reality will work very well for me. It sounds smart not to try with double vision, Toni. Not a good idea for now. How are you doing in general? This is not an easy road we walk, at all. Let me know how you are doing. Sincerely, Lori
Replies to "@avmcbellar Hi, Tony! Thanks so much for asking if my pain has gone down without my..."
Hi Lori @lorirenee1 nice to hear from you! Every day is certainly a challenge for us. My daily goal is to do what I can just to make it through the day. Being able to sit down is a big deal. I am glad that the pain has settled. I am with you regarding your peculiar shin sensations. I hope that also goes away eventually. I have been through shocks a few times myself. I don’t recall any residual effects after like muscle soreness. I did have my bodily sensors intact then. Have you tried a fan blowing on your shins as Hank @jesfactsmon suggested Linda does for her feet? Here in central Florida I always have the ceiling fan on while I sleep. It seems to help.
How do you manage without depth perception? Doesn’t it affect your balance at all? I know it does for me because stepping on a soft surface is difficult for my brain to maintain my balance. Outside surfaces like a lawn or gravel are extremely difficult to walk on without a quad cane. I am able to go grocery shopping by using the shopping cart to hold on to so I can walk. The shopping cart becomes my walker.
I have visited the website for assistance with neuropathy using VR therapy. It offers help in 2 ways. One is the VR goggles and the other is using your phone. Have you tried your phone for the exercises? That should be better for you.
Thanks for asking. I feel better now that I got rid of that awful burning in my stomach and esophagus. It would last all day. Sometimes too much of a supplement may not be good either so I rely on a balanced diet. As a result of stopping the eye exercises my motion sickness has decreased to what it was before. I feel my double vision has improved slightly. I tried the eye exercises as you did the stimulator. We learn what is best by the process of elimination since the health industry provides no answers. I am waiting to try corrective eye surgery next to align my eyes and eliminate the diplopia. My neuro ophthalmologist believes the majority of my motion sickness is due to the misalignment of my eyes. We can have several health issues without our nerves or bodily sensors to send accurate signals to our brain so our brain can fix a problem or allow us to do tasks. Simple things to a normal person can become BIG challenges for us. Hang in there Lori. I wish you the best to relieve your pain. Toni
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They really screwed up with the DRG with you. So sorry. Sounds like they put the wrong leads and set it to the wrong settings for you. I’m so sorry. You should NEVER feel the leads or the “electricity” unless YOU want to.
I’m glad you had it removed.