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I am also looking for people who have had the Stimwave implant. I had a Nevro spinal cord stimulator implanted 4 years ago and it has been completely useless! The company reps are very nice (although they change frequently) and diligent about trying new programs, but with no success. I’ve suffered from severe lower back and hip pain since 2003, when I was (apparently) dropped in a hospital under anesthesia. I woke up with my tailbone snapped off at the sacrum and shoved up into my body. The pain was excruciating. 5 months later, the tailbone was removed by a neurosurgeon and I got immediate relief. But a few days later, I started experiencing this other pain that no one seems to know how to fix. It’s been diagnosed as SI joint dysfunction, dislocated pelvic bone, entrapped cluneal nerve, etc. but no one seems to know how to help it. I had a morphine pump for 8 years, which did help, but the side effects were terrible...severe brain fog, short term memory loss and occasional black outs. It was replaced by the Nevro spinal cord stimulator, which has been useless. I’ve also had dozens of SI joint injections over the years, various nerve ablations, chiropractics and Accupuncture. My only temporary relief comes from opioids, but doctors are getting very reluctant to prescribe them. My current doctor is the second to inform me that he will no longer prescribe them and that I need to find another doctor. I am very fearful for the future. Was hoping that Stimwave might be the answer, but now I’m not so sure.
Replies to "I am also looking for people who have had the Stimwave implant. I had a Nevro..."
@texasaviatrix I had a DRG stimulator implanted in me about 4 months ago, and it barely does anything helpful at all. Pretty useless. I would suggest that you google "Stimwave blogs" to perhaps find real people who have it, and what their experience has been. By the way, I get Nevro Spinal Cord stimulator advertisements on my facebook page, and literally, easily 100 people have written negative reviews about their stimulator. Utterly terrible reviews with horrific descriptions of their condition due to the Nevro. I think Nevro advertises because if they get 1 or 2 people to use it, then their mission is accomplished. For what it is worth, I have a feeling that ALL of these devices only help very few people, and sometimes help for awhile, and stop working. Be very careful and research from real people, not advertisements. Also, research Kratom. It is a leaf from a SE Asian tree that really helps nerve pain. Message me if you want to know more. I have read what you are going through, and it is horrific. I am just so sorry. LoriRenee1
@texasaviatrix
I am so horrified at what happened to you in the hospital in Texas! My god, I can't believe even a halfway decent lawyer couldn't have gotten a pretty good settlement for you. Ugh, such incompetence by the medical staff!
Just wondering, your Mayo name sounds like you fly airplanes. Are you still doing it or was that before the horrendous injury? If you are still flying I am in even more awe of you. 😲
Best to you, Hank
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Hello @texasaviatrix, Welcome to Mayo Clinic Connect. There are a couple of other discussions that you may find more helpful.
- Stimwave user here: https://connect.mayoclinic.org/discussion/stimwave-user-here/
- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
Have you tried any alternative treatments or therapy like Myofascial Release Therapy? -- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/