Peripheral nerve stimulators
This is a long shot, but I’m looking for people who have used implanted peripheral nerve stimulators (PNS) to control nerve pain. They block the pain signal to the brain. Stimrouter and Stimwave are major brands. These are NOT the same thing as spinal cord stimulators, of which there are many brands. I’m about to have a Stimwave implanted to block intractable pelvic and leg nerve pain.
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Welcome Jim! These ones are special for you today, now that I know you enjoy them so. Im glad you bought the pink lilies and planted promptly. 👍🏼 Way to go! I hope they put a smile on your face.
@rwinney I should try to post pictures of the ones I have. Maybe while our daughter and family are here I'll do it when I'm just sitting around. Thanks for sharing yours. There is quite a variety of colors.
Jim
Wow @rwinney those are gorgeous. You must have a pretty darn snazzy yard.
@jimhd That would be great! If you go to the Covid-19 Daily Inspiration thread, you will find that I and others, like @johnbishop, post photos of flowers, rainbows, animals, birds, critters, food. It's a fun thread! Check it out.
@jimhd here is the discussion @rwinney mentioned...Visual Escapes and Daily Inspirations: Share Yours
https://connect.mayoclinic.org/discussion/visual-escapes-and-daily-inspirations-share-yours/
Thanks Hank! I try, I try. 😊
Thanks John...you always have my back so, I know I can get my gist across and you'll put the sweet final touches on it!! Haha 😁
I do I do!
@jesfactsmon They turned the devices on Monday and now I'm able to walk around for 30 minutes or more at a time. (Before the Nalu devices were in stalled in my lower legs I could only stand or walk for a couple of minutes. The pain would get so bad I would have to stop or knell on one knee.) I've been using the devices 24 hours a day, but I guess I really only need them for standing and walking. However, they also seem to help with the burning feelings in my feet. I still take some Methadone pain pills for the burning; about half what I was taking. I might be able to reduce that over time. For me the Nalu devices have been extremely successful. I'm not sure if it is better to have them installed in my lower legs or have it installed in my back. Both places have pros and cons. I don't know of anyone else who has had a nerve stimulator installed in their lower legs.
I am also looking for people who have had the Stimwave implant. I had a Nevro spinal cord stimulator implanted 4 years ago and it has been completely useless! The company reps are very nice (although they change frequently) and diligent about trying new programs, but with no success. I’ve suffered from severe lower back and hip pain since 2003, when I was (apparently) dropped in a hospital under anesthesia. I woke up with my tailbone snapped off at the sacrum and shoved up into my body. The pain was excruciating. 5 months later, the tailbone was removed by a neurosurgeon and I got immediate relief. But a few days later, I started experiencing this other pain that no one seems to know how to fix. It’s been diagnosed as SI joint dysfunction, dislocated pelvic bone, entrapped cluneal nerve, etc. but no one seems to know how to help it. I had a morphine pump for 8 years, which did help, but the side effects were terrible...severe brain fog, short term memory loss and occasional black outs. It was replaced by the Nevro spinal cord stimulator, which has been useless. I’ve also had dozens of SI joint injections over the years, various nerve ablations, chiropractics and Accupuncture. My only temporary relief comes from opioids, but doctors are getting very reluctant to prescribe them. My current doctor is the second to inform me that he will no longer prescribe them and that I need to find another doctor. I am very fearful for the future. Was hoping that Stimwave might be the answer, but now I’m not so sure.