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Sorry to hear of your experience. I now just use morphine to control the pain, plus, i use arthritis strength tylenol with caffeine and aspirin. Sometimes, I'm entirely free from pain and sometimes an ache. The drs tell me the pain is coming from my back, not where it hurts, it sure is hard to see that. Sometimes I want to cut my leg off. Before morphine, when I went to dr, I was in insufferable pain. I wanted to die and told him that if I had to live with that the rest of my life that I wanted to end it and even tho I'm a christian, I couldn't help it. I told him that if his wife were in the same pain that I was in, that he would give her something to ease the pain. Before that, I had Salon Pas patches up and down my leg where it helped the most and slept with an oversized heating pad laying down my leg. I'm hoping that I'm a candidate for spinal fusion and that it takes the pain away eventually. I don't mind a little pain but what I was going thru was horrible. Good luck finding something.
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I forgot to introduce myself to the group . My name is Alan and Im from Vancouver BC. I am 60 yrs old and have been suffering ever since 2011. I had a very active and rewarding job , was athletic , had a very happy marriage , was outgoing and had a very active social life. Of those , only the marriage remains . I am very fortunate for when adversity strikes, your family and a one or 2 good friends are all that matters. Mine is a classic chronic pain saga that I’m sure you are all familiar with. I am hoping to engage with this group to share support and encouragement in addition to sharing information.
Now to reply to you, Yes I’m on high dose opioids too . When my DRG was working I weaned off them ...it was so good being off them . It’s like your personality comes back and all the side effects go away . But here I am 5 years later on max dose plus oxcarb and lyrica and having a very rough go of it. I too would have an amputation in a minute if it would solve anything , but alas , not. Really hoping a PNS device will give me a little boost .
So I can relate totally to your feelings of despair , as I share them .
Alan