I too am looking for Stimwave and Nalu users. I have had a nasty saphenous nerve neuralgia on my left knee since ACL surgery in 2011. As with most chronic pain stories, mine resulted in a total life change, having severe neuropathic pain almost all the time, losing my job, career and many friends ,and enduring countless procedures, medications and surgeries. Here I am almost 10 years into this and I am now mostly bedridden and disheartened. This is the classic chronic pain story .
In terms of nerve stimulator‘s, I had two trials of traditional SCS. Both were accompanied by significant side effects that resulted in failed trials. In 2015 I went to Australia to have the Axium DRG stimulator by Abbot put in. I had a successful trial and went on to have 7 months of 70% relief that allowed me to start a new life albeit with pain. It was great , I finally felt like I was moving forward. Sadly , despite many adjustments and trips to Australia ,my device just slowly lost its effectiveness. It was not a result of a technical problem, it was just my body getting used to it and undergoing neuroplasticity.

Nothing has helped ,however ,during my more recent nerve surgery a very significant finding was observed. A femoral nerve block infusion was used postoperatively to help my pain and indeed it blocked not only the post op pain but all my neuropathic pain in my leg too. Therefore it showed that most of my pain was still peripheral and not predominately central as we thought before. The 36 hours it was in was like the best present you could ever receive. Suddenly you were on “ the other side” of the pain experience. Cruelly, it can only be left on for a short time. Since then, there have been many attempts to find a spot along the course of the femoral nerve where the pain block could be reproduced. It was found that the only place is up in my groin where there are femoral sensory nerve branches.

I have therefore been on a hunt for a peripheral nerve stimulator device. As I am in Canada, these devices are still seen to be experimental and hence not covered under Canadian healthcare. There is a small group of people getting Stimwave devices in Ontario, but as I live in British Columbia I do not have access to that group. Therefore I am looking to come down to the states for either a Stimwave or Nalu trial . This really is my last hope and I am only looking for a small reduction in pain to allow me to have some type of functional lifestyle. There don’t seem to be any good scientific trials yet comparing these devices and I find it’s very hard getting unbiased advice from medical professionals in the US. There seem to be pros and cons with both devices. The main pro that I see with Nalu is that I can have a trial for a couple of weeks to see if it works. That will cost me 10,000$. My insurance does not cover any of this so I am paying the $50,000 for implantation if it works. During my pain journey, I have probably spent more than $200,000 on all my therapies as several of my major procedures were done in the US or were not covered in Canada. I am sure this is not unusual .There is no monetary figure you can put on your health.
On this thread , I have read the two or three descriptions of Stimwave and Nalu connectivity issues, and I do realize that both systems require the placement of a device on the skin. Both too , have issues of lead migration.
So I too would like to hear from anyone with experience with these devices, positive or negative to help me make my decision on which one to go with. It does seem that the Nalu device is presently under favour but technological changes happen all the time so it’s hard to keep up.
Presently nothing is happening during the Covid crisis and the closed Canada US border. I am trying to get my ducks in a row so I can jump in when things open up.