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Peripheral nerve stimulators

Neuropathy | Last Active: May 24 9:33am | Replies (268)

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@jesfactsmon

Hi Lori, I think Linda's driving issues (started in 1983-4 or thereabouts) were attributed by us to fibro after we knew about her fibro, but learning about the existence of the condition Central Sensitization lately in discussions with you and Rachel not long ago makes us both factor that into the equation. She is and has been super sensitive to pretty much everything her whole life or certainly since we've been married. And when she was younger and more able to cope it was not a problem. Now that her body seems to be weakening it's becoming a problem. Especially noticeable since about April of '19. I mark it to after she took a steroid for a sinus issue, perhaps in March-ish of '19. She got her first severe itch problem maybe in April? It was bad for a while, quite bad. After a few months it seemed to be less of a problem. But her energy is taking a hit from the endless foot burning. Never stops but varies between a 2-3 level sometimes to 7-9 most of the time or maybe 65% of the time. Thank god she sleeps! That is a saving grace. Lori I think you are dealing with much more pain than Linda is (and that is saying something). When you describe your situation it boggles my mind. I am SO HOPEFUL for you and the drg install you are trying. My fervent hope is that you keep the 40% relief and get even more, much more after you have the actual installation assuming you do. I hope something like this can help Linda. I am dubious only because she is so sensitive that things that might help a regular person can backfire bigtime for her. So many things that other people recommend because it has benefitted them seem to do the opposite for her. She is just getting ready for bed (I just got up -we tag team - long story) but tomorrow I will read her your post with your suggestion to talk and let you know. You are a very good lady Lori. It's hard to believe so many fine people are having to cope and deal with SO MUCH just to be able to jst do the basics and live their lives. Sheesh! I appreciate this website so much as it really helps in so many ways to have it. Thanks my friend, will be in touch. Hank

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Replies to "Hi Lori, I think Linda's driving issues (started in 1983-4 or thereabouts) were attributed by us..."

@jesfactsmon @rwinney Hi, Hank and Rachel, Just read your most recent posts, and what we all go through just to survive one day astounds me. Just to drive a car for a bit, just to pull a weed....the determination of the human spirit, is all I can say. Rachel, you are just such a survivor. I know you agonize, but you do utterly everything to survive. You are awesome. Just awesome. You amaze me. Linda tries so hard. She is like a delicate flower. Hank, I do think, for whatever it is worth, and I may be wrong, that Linda should at least see a neurologist. Maybe something has been missed, and her condition is worsening. Maybe if only for blood tests. Neurologists do blood tests specific to neuropathy. The problem is, there isn't much treatment at all. But just in case something has been missed. Maybe it is time. I also think that maybe Linda needs evaluation for physical therapy. Maybe a one hour intake evaluation, to see if anything can be done. Has Linda been on elavil? That can help symptoms of the fibromyalgia. After my breast cancer surgery, I was not regaining strength very well. This was even before my neuropathy set in. My doctor insisted that I do physical therapy, and once the neuropathy set in, I swear, the physical therapy gave me enough strength in especially my legs, to at least be able to walk well. All through my neuropathy, I get very pissed off. I release my anger by walking. Sometimes, the greater the pain, the more I walk. I am so thankful to do this, and I know I could not with the original Physical therapy. Please, Hank, have Linda get assessed. As I write, I am thinking of Rachel. I know Rachel does everything she can to do her best. I would like Linda to do even more. I know Hank, that only you see Linda, and know how hard she tries. I hope I am not out of line. I am assessing based on what you write, and want the best for her. One other thing, Hank. I used to get terrible sinus infections many years ago. The doctor once prescribed a steroid inhaler for the sinus infection, and I wound up with major Panic attacks from the inhaler!!!! A very good doctor recognized this, put me on Xanax, and panic attack symptoms went away. He also prescribed an herbal product from the Nature's Sunshine Company, called ALJ. It is currently marketed as "Seasonal Allergy," formerly ALJ. If I get a headache around the bridge of my nose, I only take ALJ. You can get it on line. Just type in ALJ, or Nature's Sunshine Company. I have recommended this product to 2 people. Both managed not to have sinus surgery by using it. I want the best for Linda. She definitely, like Rachel and I, has Central Sensitization. Rachel, LInda, and I are like delicate flowers that pack a punch!!!! OY!!! Life is so precious. Life is so fragile. That is why I can gluttonize on Chocolate Chip ice cream. Sometimes ya gotta do, what ya gotta do. Hank, if you want to talk on the phone, or whatever, let me know. You too, Rachel. I am here for you guys. Hang in. With love, Lori