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still working with small fiber neuropathy

Neuropathy | Last Active: Apr 4, 2023 | Replies (61)

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Hi @swartzki, I gave up work because of SFPN, my feet were so painful that it made simple walking a chore. I did work from home for over a year, that was much better. Luckily I was able to file for disability. I soon found that I filled my days with new activities, like studying the Bible. Grandchildren were and still are an important part of my life. I was fatigued, so I took naps. It took some time to even partially accept my SFPN condition and even today I still think there will be a turnaround someday. Its not unusual to feel abandoned by God.
In fact ,its probably normal. Your faith will wax and wane over time.Let the thoughts come and then let them go. Look for God working in your life despite how you feel. Hold on to your love of your grandchildren. You will know when its time to cut back at work and know that you might go kicking and screaming. We never know when our last day might be so give thanks for today. Your job is just to show up each day, for worrying never solved one thing. Wigs are in, so what color do you want to be today? Letting go of pride is so difficult, it still is for me. Ask yourself, what is the worst that might happen ? might our life expectancy be shortened or lengthened? will we all just be going home, back to God, "Return to Love" as Marianne Williamson has so wonderfully been quoted.
Keep the faith,lose the pride,stay the course and Pray for guidance and know that you are loved. David

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Replies to "Hi @swartzki, I gave up work because of SFPN, my feet were so painful that it..."

Thanks, David. God is speaking through you today! I don't fear death itself. Like you I really believe that I will go to a wondrous place. I have two big worries: taking care of myself while I'm here and not being around to see my sweet grandbabies grow up. You are right about all of it, and I will try to follow your advice. May I ask how long you have had your diagnosis?

Beautifully spoken.