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still working with small fiber neuropathy

Neuropathy | Last Active: Apr 4, 2023 | Replies (61)

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@lorirenee1

@sswartzki I have not tried IGIV. Know nothing about it. Just started Low Dose Naltrexone, which is helping my foot pain. I have never heard of hair falling out from neuropathy. Are you sure it is from this? Are you on any meds that could do this, or any diet changes that could effect hair? You are the first person I have heard about who has this from neuropathy. I do understand though, that it is the least of your problems. Lori

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Replies to "@sswartzki I have not tried IGIV. Know nothing about it. Just started Low Dose Naltrexone, which..."

@swartzki, @lorirenee1 My memory includes one observation of hair loss and it was related to mercury allergies after dental work during prostrate cancer. The hair grew back all white. Did your medical practioner advise you that you might experience hair loss? Be content today and feel safe. Chris

I'm guessing the hair loss is neuropathy because my scalp tingles, and it feels like bugs crawling around. Awful. The hair loss was one of the first problems I had, and the dermatologist was the first medical expert to suggest neuropathy. I thought I couldn't live without my hair. So hard. I really had beautiful hair. It defined me. Guess God taught me a lesson there. My preacher said to be,"You'd' be surprised what you can do." You are so sweet, Lori. I sure hope this new med gives you some relief from that pain. I'm so happy to hear the breast cancer surgery was a success. Thanks, Chris, I'm learning to be happy any day when I'm not in physical misery. Today is good. Iceblue,I agree that is weird about the tramadol. I sure hope you find what works. To all of you, I tried medical marijuana too, but it caused extreme anxiety. Admittedly, I didn't try all of the options. Maybe that would work for some of you.

I ask the same question,my hair has thinned out,but, I believe it is from B.P.Meds. and hydralazine is listed as a cause of P.N.,but I got mine from 2 years of antibiotics for an undiagnosed MRSA infection and I seen a old program that mentioned a guy having all my symptoms from either a MRI or Cat-scan ,I had both during my time and they said it spread the MRSA through out his body,he had to have his blood cleansed in hospital for 2 yr.s! I do not remember him burning like me,I burn all over and hydralazine makes it worse! I' m beginning to think the spironolactone is doing the same thing!