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still working with small fiber neuropathy
Neuropathy | Last Active: Jun 14 2:14pm | Replies (62)Comment receiving replies
I've tried all of the meds for neuropathy, but every one caused unacceptable side effects or had no effect on my sfpn at all. Lyrica was starting to help me but before I got up to full dose the side effects put me in the hospital for a few days. I was incoherent, could hardly walk, couldn't put together a complete sentence and had no memory.
I suppose you plan to continue to take the Gabapentin for at least 6 weeks. That's how long it takes to be able to assess whether or not a medication will work for you. Several of my siblings have found that Gabapentin worked for them. Patience and persistence are two qualities to exercise during the sometimes frustrating process. I spent 2 or 3 years searching for the antidepressant that improved my depression, and much longer than that to come up with a combination of meds to treat my pn. And I'm afraid that what's working now may not work a year from now. It's a process of trial and error that could take a couple of months or 5 years. We just keep experimenting until the Voila! moment comes.
Jim
Replies to "@ecc79 I've tried all of the meds for neuropathy, but every one caused unacceptable side effects..."
Thanks Jim. Appreciate the feedback
I just popped on here because i’m having severe agitation and symptoms from my small fiber neuropathy. I’ve had adverse reactions to all the antidepressants. Gabapentin hardly takes the edge off and keeps me in a zombie state. I’m concerned Lyrica would do the same. I was prescribed a cream compound which has five medicines in it. I broke out in hives and I think it could be due to the sunlight hitting it. It just makes me tired and doesn’t take away the crazy buzzing nerves either. My legs are very weak and I’m having all sorts of autonomic issues. Is anybody else suicidal with this? I cry every morning because my nerves are so on edge and uncomfortable. I can’t stand the way they feel. I’ve been to my neurologist numerous times and he said he would have to send me to a pain management doctor if this doesn’t work. I feel so helpless there’s no way I could work in this condition because I’m literally crying most of the days just enduring the terrible sensations and I don’t have strength or the capacity to deal with any sort of stress.
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Jim, do you mind telling me what you are taking for depression? I'm beyond depressed, but all meds exacerbate the constipation that comes with my neuropathy.