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still working with small fiber neuropathy

Neuropathy | Last Active: Apr 4, 2023 | Replies (61)

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@jimhd

@ecc79

I've tried all of the meds for neuropathy, but every one caused unacceptable side effects or had no effect on my sfpn at all. Lyrica was starting to help me but before I got up to full dose the side effects put me in the hospital for a few days. I was incoherent, could hardly walk, couldn't put together a complete sentence and had no memory.

I suppose you plan to continue to take the Gabapentin for at least 6 weeks. That's how long it takes to be able to assess whether or not a medication will work for you. Several of my siblings have found that Gabapentin worked for them. Patience and persistence are two qualities to exercise during the sometimes frustrating process. I spent 2 or 3 years searching for the antidepressant that improved my depression, and much longer than that to come up with a combination of meds to treat my pn. And I'm afraid that what's working now may not work a year from now. It's a process of trial and error that could take a couple of months or 5 years. We just keep experimenting until the Voila! moment comes.

Jim

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Replies to "@ecc79 I've tried all of the meds for neuropathy, but every one caused unacceptable side effects..."

Jim, do you mind telling me what you are taking for depression? I'm beyond depressed, but all meds exacerbate the constipation that comes with my neuropathy.

Thanks Jim. Appreciate the feedback