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still working with small fiber neuropathy

Neuropathy | Last Active: Apr 4, 2023 | Replies (61)

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@swartzki

Did either of you try IGIV? I am hoping it will help with the weakness and flu symptoms. My husband is not supportive, so I'm terrified at the thought of disability. Also, Rachel, if you don't mind my asking, how long did you work after your diagnosis? I'm sorry this is happening to you. Lori, the flu-like symptoms are hardest for me in the morning too. Do you still work? Have you tried tramadol for the flu-like aches? It's all that helps me. Thanks to both of you.

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Replies to "Did either of you try IGIV? I am hoping it will help with the weakness and..."

Also, all of my thick, blonde hair fell out. I'm the only person I know of whose lost her hair because of neuropathy. It's terrible, but I would be happy bald if I could eliminate the exhaustion, headaches, and weakness.

@swartzki Hi, it's Lori. I am 68, and retired. There is no way I could work with my foot neuropathy. I would have had to claim medical disability had I had this neuropathy when I was working. Mine started immediately after breast cancer surgery, almost 2 years ago. Neuro docs checked for an auto immune response to the breast cancer tumor, but the test showed nothing. Perhaps the radiation caused the neuropathy. I will never know. God awful. Successful breast cancer surgery, and now, neuropathy. Who woulda figured? I will look into the Tramadol for the flu like symptoms. Thanks much. Lori Renee

I have not had IVIG but have learned about it in case it is an option for me in the future. My symptoms began 3 1/2 years ago but were not diagnosed properly until last February. I worked for 9 months after symptoms began but was also diagnosed with chronic migraine during that time. My disability was approved based on migraine then other symptoms escalated ultimately diagnosing SFPN. I tried tramadol back in the early stages of pain but it did nothing for me. I've been on hydrocodone and that helps, for the most part. I wish you well and am certainly here for you if you need to discuss the challenges of working with pain or my disability journey.
Rachel