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still working with small fiber neuropathy
Neuropathy | Last Active: Apr 4, 2023 | Replies (61)Comment receiving replies
Just hanging in there myself. My experience is lower leg weakness associated with SFN. Not so much a flu like feeling but the weakness is debilitating and knocks my motivation and sense of overall strength down significantly. My doctor prescribed Gabapentin suggesting this will fire the nerves and return my leg strength but after a week still the same. I have felt like this for 2 months with no change. Long term diabetes caused this. Good control since this happened but no improvement. Any other experiences or advise from others would be greatly appreciated.
Replies to "Just hanging in there myself. My experience is lower leg weakness associated with SFN. Not so..."
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@ecc79
I've tried all of the meds for neuropathy, but every one caused unacceptable side effects or had no effect on my sfpn at all. Lyrica was starting to help me but before I got up to full dose the side effects put me in the hospital for a few days. I was incoherent, could hardly walk, couldn't put together a complete sentence and had no memory.
I suppose you plan to continue to take the Gabapentin for at least 6 weeks. That's how long it takes to be able to assess whether or not a medication will work for you. Several of my siblings have found that Gabapentin worked for them. Patience and persistence are two qualities to exercise during the sometimes frustrating process. I spent 2 or 3 years searching for the antidepressant that improved my depression, and much longer than that to come up with a combination of meds to treat my pn. And I'm afraid that what's working now may not work a year from now. It's a process of trial and error that could take a couple of months or 5 years. We just keep experimenting until the Voila! moment comes.
Jim