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There isn't much support you can get. He's home now, but I'm getting worse. I don't know if I have MS, ALS, or what. But the double vision is worse, I'm nauseous and off balance. The burning in my body happens every night. Always when I sleep. I think I need an exploratory but they won't don one since they think there is nothing wrong. Panic attacks every morning. Sometimes all day. Sometimes not. I have an EMG coming up but haven't a clue what that will show if anything. I think there definitely is something wrong with my insides but test like colonoscopy, endoscopy fine but don't know if it could be on top of the organs. Feels like something is eating away at my insides. Weird but I'm getting weaker each day, and frustrated and angry.
Replies to "There isn't much support you can get. He's home now, but I'm getting worse. I don't..."
@dablues Good morning. I’m so sorry you weren’t able to get any help from the social workers at the hospital. Is your husband OK now and can take care of himself? You said that you’ve seen a gastroenterologist, but all the tests came back fine and they don’t want to do any surgery. Is this correct? It seems that you are suffering from maybe a chemical imbalance and surgery won’t help at all. Can you see doctors at a larger medical center than the one you’ve been going to? Many local doctors are very accustomed to seeing the usual problems and just don’t know where to begin on the real complex ones. This was a problem I ran into when I was finally diagnosed. None of the doctors had ever heard of the disease before! Lucky me. Can you try a larger medical center?
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This describes me to a T. Do you take gabapentin? It helps me a little but I have been suffering for over 2 months now with all of this burning, brain fog, blurred vision and so much more that I’m just too tired to type. Do you have a LLMD. I am looking into seeing one or going to Mayo Clinic to be diagnosed/ tested for Lymes disease or co infectious disease. I have also been suspicious of internal shingles