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Weak, Sick, & Scared

Autoimmune Diseases | Last Active: Jan 31, 2020 | Replies (24)

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@ladyvol

Hi! I notice several symptoms that are similar to the neurosarcoidosis that I now live with. Sarcoidosis is like other autoimmune diseases and can attack most any organ. It can cause facial palsy when it hits the nervous system, but it is a very hard disease to diagnose because it is not restricted to one body system. It usually starts in the lymphnodes in the lungs, but not necessarily. It commonly affects the eyes and vision. A rare disease doctor, critical care specialist, rheumatologist, or any specialist in sarcoidosis can help. Unfortunately, they are hard to find. Often, the patient has to mention it, then the doctors start looking at everything differently.

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Replies to "Hi! I notice several symptoms that are similar to the neurosarcoidosis that I now live with...."

Hi @ladyvol, Welcome to Mayo Clinic Connect. Thank you for sharing this helpful information. You mentioned you now live with neurosarcoidosis. Are you able to share any suggestions that help you live with the symptoms you have?