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Weak, Sick, & Scared

Autoimmune Diseases | Last Active: Jan 31, 2020 | Replies (24)

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@becsbuddy

@dablues Have you had a chance to talk to the social workers at the hospital where your husband is. What have they said? Are they able to give you any support?

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Replies to "@dablues Have you had a chance to talk to the social workers at the hospital where..."

There isn't much support you can get. He's home now, but I'm getting worse. I don't know if I have MS, ALS, or what. But the double vision is worse, I'm nauseous and off balance. The burning in my body happens every night. Always when I sleep. I think I need an exploratory but they won't don one since they think there is nothing wrong. Panic attacks every morning. Sometimes all day. Sometimes not. I have an EMG coming up but haven't a clue what that will show if anything. I think there definitely is something wrong with my insides but test like colonoscopy, endoscopy fine but don't know if it could be on top of the organs. Feels like something is eating away at my insides. Weird but I'm getting weaker each day, and frustrated and angry.