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Replies to "Your symptoms are very similar to what mine have been for about 3 years. This all..."
Hi! I notice several symptoms that are similar to the neurosarcoidosis that I now live with. Sarcoidosis is like other autoimmune diseases and can attack most any organ. It can cause facial palsy when it hits the nervous system, but it is a very hard disease to diagnose because it is not restricted to one body system. It usually starts in the lymphnodes in the lungs, but not necessarily. It commonly affects the eyes and vision. A rare disease doctor, critical care specialist, rheumatologist, or any specialist in sarcoidosis can help. Unfortunately, they are hard to find. Often, the patient has to mention it, then the doctors start looking at everything differently.
I have a neurologist but no one seems to help. Had to postpone the 14th of January for the EMG and now can't get one done until February. Nothing has changed for the better.