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Weak, Sick, & Scared

Autoimmune Diseases | Last Active: Jan 31, 2020 | Replies (24)

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@janyce

Your symptoms are very similar to what mine have been for about 3 years. This all started from being diagnosed with Bell’s palsy in April 2017. I was left with a droopy eye and mouth. My double vision began about 5 months later. That lasted 9 months then seemed to go away. It returned 6 months later. I spent many months with ophthalmologists. Many tests and no diagnosis. Myasthenia Gravis was suspected but blood tests negative. A new Ophthalmologist diagnosed optical M G in th spring of 2019. When I became ill with bronchitis last summer, I was admitted to hospital and was told that 15% of people with normal blood tests for M G have this autoimmune disease. Flares are triggered by illness and your flu could be doing this.
See a neurologist and be checked. I am being treated and am having some relief.
Don’t give up. I pray that you and your husband have big improvements soon.

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Replies to "Your symptoms are very similar to what mine have been for about 3 years. This all..."

I have a neurologist but no one seems to help. Had to postpone the 14th of January for the EMG and now can't get one done until February. Nothing has changed for the better.

Hi! I notice several symptoms that are similar to the neurosarcoidosis that I now live with. Sarcoidosis is like other autoimmune diseases and can attack most any organ. It can cause facial palsy when it hits the nervous system, but it is a very hard disease to diagnose because it is not restricted to one body system. It usually starts in the lymphnodes in the lungs, but not necessarily. It commonly affects the eyes and vision. A rare disease doctor, critical care specialist, rheumatologist, or any specialist in sarcoidosis can help. Unfortunately, they are hard to find. Often, the patient has to mention it, then the doctors start looking at everything differently.