1. < Digestive Health

Disappointed

Posted by martft4 @martft4, Jan 9, 2020

Well had my appointment and it was a waste of my time and energy.
Guess I will just have to not have a life anymore.
Since the stomach pain is affecting every part of it.
So disappointed and sad and feel like giving up.

Interested in more discussions like this? Go to the Digestive Health Support Group.

martft4 | @martft4 | Jan 10, 2020
In reply to @astaingegerdm "@mrtft4 - I understand how it feels to be disappointed after going to a top medical..." + (show)
@astaingegerdm

@mrtft4 - I understand how it feels to be disappointed after going to a top medical facility. As you have noticed, many doctors are not good at getting down to the patient’s level and EXPLAIN why no tests needed to be ordered as well as going through in detail again why you feel so sick- what is your body’s response to your illness. You do have a very difficult disease but you have to be told what happens along your intestinal tract. In my personal experience it is easier to deal with the daily misery if I understand what is happening and what the medicines are doing to help you.
I think someone mentioned acupuncture- could be worth a try - as well as other treatment modalities aimed at relaxation. It might be helpful to see a therapist about living with a chronic illness. Don’t give up!

Jump to this post

Thank you
I have been doing some relaxation techniques I learned online to help try and deal with the pain.
Yes it is not easier but helpful and I do a lot of reading about it. I also have a sister who suffers from the same disease so we do a lot of talking to each other on the phone about it. So having her to talk to helps a lot.
I’m not giving up I have my grandchildren and children who need me around sick or not,lol.
Usually I am upbeat but yesterday just knocked the wind out of my sails I think so I jumped on the pity pot.
I’m feeling better this morning and didn’t have a episode last night so I actually got a straight 5 hours of sleep so getting that much sleep helps my mood also.
I think I’m just in a flare that is taking longer to be done then I normally have. Most last two or three months and this one has been six at least. So now it’s time to put my big girl bloomers on and keep on trucking,lol.
That is true about the doctor especially when I hear about the green bile vomit and how it could be gallbladder or something not related to the gastroparesis. It would of been nice to hear why no tests ordered especially since it’s been over a year and half since had endoscopy.

REPLY
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Jan 10, 2020

@martft4 - it is nice to hear that you and your sister have each other- mini- support group! There will be good days and less good days. Do something special on good days- that’s what I used to do the years I spent with pain.

REPLY
1 reply
martft4 | @martft4 | Jan 10, 2020
In reply to @astaingegerdm "@martft4 - it is nice to hear that you and your sister have each other- mini-..." + (show)
@astaingegerdm

@martft4 - it is nice to hear that you and your sister have each other- mini- support group! There will be good days and less good days. Do something special on good days- that’s what I used to do the years I spent with pain.

Jump to this post

Yes since she has lived with it longer it’s always good to know what to look for or just complain too,lol.
I tell her she is the energizer bunny because she just keeps going and going. Even when she is having a tough day.
I want to be like her and I try.
And then other days bed is my bestie lol.
On my good days I do as much cleaning and cooking for my family and also baking.

REPLY
View MoreView Less
Please sign in or register to post a reply.