← Return to How You Experience Autism

Discussion

How You Experience Autism

Autism (ASD) | Last Active: Aug 22, 2020 | Replies (171)

Comment receiving replies
@mamacita

@merpreb and @gingerw , good Monday morning to you.

It occurred to me that my response to your question about assessment and diagnosis was more centered on childhood Autism.

Ginger addressed at length about the assessment process for adults. I dont have too much to add at this point, other than my own experience.

There are many tests out there that one can take to give you an idea of what is going on. Many really good books and articles by well known authors. I will mention some of my favorites later. Many adults, like me, were misdiagnosed so many times. ADD is one of my "gifts." And honestly, when I took the medication for it, it helped a lot. Until 3:30pm every day.

And you know what? ADD medicine did nothing for my anxiety and depression. Nothing for the "looping" behavior that is so common in those on the Spectrum. And what about the anxiety that I was only just recently diagnosed with, but have had all of my life?

Let me tell you my non professional opinion. Of COURSE people on the Spectrum are more likely to have extreme anxiety than just the ordinary person walking down the street. When your hearing is off the charts, and you hear Everything....when all of your senses are maxed out, there is going to be a certain level of anxiety. Period.

I masked the other day at the hospital. It is so easy for me to do that, I just naturally get into that space in my head and run with it. Unconciously. Until later, when I rehash what I said and did . And I wonder why I wasn't authentic.

Today I probably looked like a homeless person, as I trekked to the neighborhood store to purchase coffee. We were out. Having coffee in the morning is a necessity. More important than being dressed appropriately or having makeup on. I looked like a Lumberjack's wife, circa 1850. Buffalo plaid flannel jacket over a Brown Praire Skirt. Yes, I was quite the sight. The jacket belongs to my husband, and it comforts me.

But you know what? The little check out girl at the register smiled at me and asked me how I was doing. Even though I was a mess. She still made that connection. That's real people , right there.

Those kinds of people are the salt of the earth, by the way. Anyway, we adult Auties tend to mask so well, want to "fit in" so well, that, we lose ourselves in the process. That prevents an accurate diagnosis, in all too many cases.

Next time I will bring up a hot topic....stimming. What is it? What does it look like? What is it's purpose? Why should we permit it?

You guys are the best. That's why I needed to check in with you, see how you're doing.

Until next time,
Mamacita Jane

Jump to this post


Replies to "@merpreb and @gingerw , good Monday morning to you. It occurred to me that my response..."

Good morning, @mamacita

You give such good information with personal examples/experiences thrown into the pot (so to speak). Thanks for that! I'm looking forward to learning about stimming. Hmmm, wonder what this is like?

@mamacita Good morning back to you. I dress for my comfort. Where I lived before, my wardrobe was a mix of what-to-wear-to-fit-in-kinda, and what I was comfortable in. Here, in this little town, I have been able to ditch for the most part, those clothes that were not all that comfortable, and be "me" more. right now my favorite over jacket is a sherpa fleece lined plaid men's jacket. It appeals to my comfort of feeling the soft fleece embrace me.

On my left wrist I wear a braided silver bracelet, 24/7. There is a small silver loop near the catch that can be manipulated. If you watch, you will find me often automatically going to the little loop, rotating it over-and-over, creating that sense of calm I need when anxious, a tangible relief. I used to wear a cuff bracelet and constantly run my fingers over the pattern. When I wear my medical alert bracelet, I can use features of that to stim and calm me. Each autie person has a favorite way to stay grounded, as it were. At times when it's required to not have the bracelet, I feel very anxious and nervous. Should it be allowed? Absolutely, for me.
Ginger

@mamacita- Good morning. Such wonderful information! I do understand what masking is- I looked it up too. This is so interesting. My nephew use to dance like there was no tomorrow, and hard type dances they were! I used to call him a monkey when he was younger. As he grew and went to college and beyond he hated staying in the room with his family. We were usually out for dinner. Maybe the noise bothered him? I don't know anything about his social life. His mother, I think is the only one who gets through to him right now.
I look forward to learning more from you.
How is your dayghter today?