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@ginger and @colleenyoung ,
Well here we are, still in ICU. Her pneumonia is being treated, and everything else that was an issue is under control. So we are very, very grateful. It's not over yet. But we're getting there.
Now as for me, I am going to have to do a lot of self care this weekend. I have held everything in for the most part, and tried to be myself as I advocate for my daughter. Now is not the time for masking. I really dont care if I fit in here or not. I want everything possible done for her while she cannot speak for herself.
If I don't schedule some "me time" I will likely have a melt down. That is just a fact. I have had to be the strong one, due to circumstances beyond our control. Sirgalahad keeps telling me to watch funny movies, put lavendar oil in an infuser, and drink a hot cup of herb tea. No need to tell him I prefer Diet Dr.Pepper, my vanilla candles, and Netflix movies/Action/Adventure.
I may even attend a baby dedication tomorrow. I havent set foot in church in forever. Our whole family has been so sick, one after the other, the parishioners might think we are guests when we actually do show up!
As far as being sensitive, I am very sensitive right now. So far my battle of the mind has won over the dark thoughts and negative things thrown our way. I have calmed down about the mistakes that were made the first day. I believe I have a better understanding after speaking with the head nurse.
You know, I wish I wasnt so sensitive, sometimes. But it has made me be the person I am. God knew what He was doing when He made me a human sponge!
But I digress. Fun fact:When you've met a person with Autism, you've met one person with Autism!!!! We are not all Math whizzes. We don't all have superior, dog like hearing.....But I do. We all are not developmentaly delayed. Many of us are gifted, or just plain smart. Some can teach themselves foreign languages. Many graduate school with high honors. Some have dyslexia yet have genius level IQ's.
Did you know that the Israeli Army recruits Aspies for their Intelligence Division? Pattern recognition and all that.
Autism is not a death sentence. It is actually quite liberating.
Thanks again for all your support, everyone. I love you all.
Mamacita Jane
Replies to "@ginger and @colleenyoung , Well here we are, still in ICU. Her pneumonia is being treated,..."
@mamacita,@gingerw- I'm so glad that you have stated this. From the time that my youngest nephew was a young lad most of my family were aware that he had behavioral problems. As he got older, less sociable and in his own world most of us in the family suspected that he was within the Autistic Spectrum. However, none of his doctors ever tested him for this until this year. He's in his middle 30's! The poor kid had every possible personality test and anything else his many, many doctors could think of but not for Autism.
Would you describe what the tests are? Are there blood tests involved?
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@mamacita That is a very interesting fact about the military recruiting those on the Spectrum for special missions!
As for taking care of yourself this weekend, if there is a way to order that from us here at Mayo Connect, we are so ordering! You need time to recharge and regroup. You cannot be of service to yourself nor to your family without that, but I know you know that. I hope you know that I am saying this in a very loving way to you, sister to sister. It seems your life has been turned upside down and put through the wringer recently. You're right we feel so deeply and we are so sensitive; that's what makes us good at what we are good at.
Please let us know how we can support you through this. Your daughter and all are blessed to have you.
Ginger