1. < Autism (ASD)
Mentor

How You Experience Autism

Posted by Ginger, Volunteer Mentor @gingerw, Jan 8, 2020

I came across this article today, posted on The Mighty. I "get" it, as it is familiar to me. How do you react to her vision of the manifestation in her life?
https://themighty.com/2016/04/what-does-autism-feel-like/
Ginger

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lioness | @lioness | Feb 22, 2020

@mamacita Prayers coming your way hang in there . Do what you have to stay strong for your daughter then you can rest you,ll need it

REPLY
Mamacita, Alumna Mentor | @mamacita | Feb 23, 2020

Thank you so much,@luoness....Yesterday was a much better day for her.

We never seem to get there when the doctor is there. But we talked with the nurse in charge a lot. She is pregnant and looks so tired. She is nice to us and answers our questions.

Housekeeping accidentally took up with the laundry a specially soft little afghan I had brought for her to be a comfort to her.

I told the nurse ir was not the end of the world, obviously, but that we really wanted it back. It was brought there for her comfort in a very difficult time. I hadn't even intended for it to stay there overnight. It was obviously not hospital issue. Wr hope it will be returned today.

When I get overwhelmed I fixate on something I can change. I have very little control over the quality of staff towards my daughter. But I can sure try to get that blanket back!!!

I am so tired. But not near as tired as I know my daughter is going to be. So I will run in here to see you all throughout the day to say "hi."

Thanks again so much for all your kind support!
Love and light,
Mamacita Jane

REPLY
3 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 23, 2020
In reply to @mamacita "Thank you so much,@luoness....Yesterday was a much better day for her. We never seem to get..." + (show)
@mamacita

Thank you so much,@luoness....Yesterday was a much better day for her.

We never seem to get there when the doctor is there. But we talked with the nurse in charge a lot. She is pregnant and looks so tired. She is nice to us and answers our questions.

Housekeeping accidentally took up with the laundry a specially soft little afghan I had brought for her to be a comfort to her.

I told the nurse ir was not the end of the world, obviously, but that we really wanted it back. It was brought there for her comfort in a very difficult time. I hadn't even intended for it to stay there overnight. It was obviously not hospital issue. Wr hope it will be returned today.

When I get overwhelmed I fixate on something I can change. I have very little control over the quality of staff towards my daughter. But I can sure try to get that blanket back!!!

I am so tired. But not near as tired as I know my daughter is going to be. So I will run in here to see you all throughout the day to say "hi."

Thanks again so much for all your kind support!
Love and light,
Mamacita Jane

Jump to this post

May you and your daughter feel blessed today, @mamacita. We are in your corner and I'm praying for you both (and also that you get the afghan back).

REPLY
Mentor
Chris, Volunteer Mentor | @auntieoakley | Feb 23, 2020
In reply to @mamacita "Thank you so much,@luoness....Yesterday was a much better day for her. We never seem to get..." + (show)
@mamacita

Thank you so much,@luoness....Yesterday was a much better day for her.

We never seem to get there when the doctor is there. But we talked with the nurse in charge a lot. She is pregnant and looks so tired. She is nice to us and answers our questions.

Housekeeping accidentally took up with the laundry a specially soft little afghan I had brought for her to be a comfort to her.

I told the nurse ir was not the end of the world, obviously, but that we really wanted it back. It was brought there for her comfort in a very difficult time. I hadn't even intended for it to stay there overnight. It was obviously not hospital issue. Wr hope it will be returned today.

When I get overwhelmed I fixate on something I can change. I have very little control over the quality of staff towards my daughter. But I can sure try to get that blanket back!!!

I am so tired. But not near as tired as I know my daughter is going to be. So I will run in here to see you all throughout the day to say "hi."

Thanks again so much for all your kind support!
Love and light,
Mamacita Jane

Jump to this post

Being the person who is there always is certainly a mixed blessing isn’t it. I feel you now. I am sending a prayer up now for you and your daughter.

REPLY
1 reply
lioness | @lioness | Feb 23, 2020
In reply to @mamacita "Thank you so much,@luoness....Yesterday was a much better day for her. We never seem to get..." + (show)
@mamacita

Thank you so much,@luoness....Yesterday was a much better day for her.

We never seem to get there when the doctor is there. But we talked with the nurse in charge a lot. She is pregnant and looks so tired. She is nice to us and answers our questions.

Housekeeping accidentally took up with the laundry a specially soft little afghan I had brought for her to be a comfort to her.

I told the nurse ir was not the end of the world, obviously, but that we really wanted it back. It was brought there for her comfort in a very difficult time. I hadn't even intended for it to stay there overnight. It was obviously not hospital issue. Wr hope it will be returned today.

When I get overwhelmed I fixate on something I can change. I have very little control over the quality of staff towards my daughter. But I can sure try to get that blanket back!!!

I am so tired. But not near as tired as I know my daughter is going to be. So I will run in here to see you all throughout the day to say "hi."

Thanks again so much for all your kind support!
Love and light,
Mamacita Jane

Jump to this post

@mamacita I'm glad it was a better day for you both I hope you get your blanket back. When your child is hurt the Mother comes out When your both better you can get your rest ,well deserved

REPLY
sirgalahad | @sirgalahad | Feb 24, 2020

thankyou Lisa Lucier I have been in touch with Mamamcitta since her daughter went into her local medical facility and was there thru the initial medical negligence and stupidity. Through Mamacita was guiding Mamacita for much better care and treatment by the doctors and . The doctors acted on my advice thru Mamacita and one hopes that things have stabilised although there is a very long road and her daughter has lymphedema and Pneumonia

REPLY
1 reply
lioness | @lioness | Feb 24, 2020

@sirgalahad So sorry to hear about her daughters problems . Bless them both . Tell her Im thinking of her and her daughter

REPLY
sirgalahad | @sirgalahad | Feb 24, 2020

what Mamamcita does need is support from the hospital where her daughter is being treated in regards to the ongoing medical treatment of her daughter and advice and a good anti anxiety meds

REPLY
Mentor
Ginger, Volunteer Mentor | @gingerw | Feb 24, 2020
In reply to @sirgalahad "thankyou Lisa Lucier I have been in touch with Mamamcitta since her daughter went into her..." + (show)
@sirgalahad

thankyou Lisa Lucier I have been in touch with Mamamcitta since her daughter went into her local medical facility and was there thru the initial medical negligence and stupidity. Through Mamacita was guiding Mamacita for much better care and treatment by the doctors and . The doctors acted on my advice thru Mamacita and one hopes that things have stabilised although there is a very long road and her daughter has lymphedema and Pneumonia

Jump to this post

@sirgalahad I am so glad you were able to give some advice for @mamacita's drs to follow, and imagine this! it was from a great distance! Thank you for your insight. We are blessed to have you amongst us.
Ginger

REPLY
2 replies
sirgalahad | @sirgalahad | Feb 24, 2020
In reply to @gingerw "@sirgalahad I am so glad you were able to give some advice for @Mamacita's drs to..." + (show)
@gingerw

@sirgalahad I am so glad you were able to give some advice for @mamacita's drs to follow, and imagine this! it was from a great distance! Thank you for your insight. We are blessed to have you amongst us.
Ginger

Jump to this post

recommendation of anti-anxiety meds that don't bring drowsiness for Mamcita daughter

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