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@baxtersmom

@ess77 When I saw your email, I went back to the beginning of this thread and saw that I was the one who started it quite a while back. I had the same exact thing happen to me. I stopped it all together and now am fine. I was in the normal TSH range even before I started taking it but my TSH was in the 4 to 5 range I think and the meds got me down in the 2 to 3 range which my doctor said was better. I keep checking it every once in a while to make sure it is stable and it is between 2 and 3. I was sweating and it would start with my head and neck area. I would get really dizzy too and nauseated. They reduced the amount but the symptoms persisted so I just tapered off of it. I believe that primary care doctors should refer people to thyroid doctors before they go putting people on this stuff. This is a very powerful medication and it is very difficult to get the dose just right. Someone with more experience who deals with these issues more frequently should be the one to be dosing this stuff in my humble opinion. As I came to read more and more about thyroid issues and testing, I came to understand how many people get labelled with Hashimoto's Hypothyroidism when the testing they have had really doesn't define to a degree of certainty that is what they have. It is just the label doctors give to people without really doing all the testing necessary to define it. I would not be at all hesitant if I were you to see an endocrinologist or a thyroid specialist if you start to feel bad again or if you are going to be on that medication for the foreseeable future.

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Replies to "@ess77 When I saw your email, I went back to the beginning of this thread and..."

I agree. An endocrinologist is the expert. Also TSH should be retested soon after the first test to confirm accuracy.

I definitely agree with you, @baxtersmom, an endocrinologist is the best doctor to see. I think PCPs often try to do too much but they are not as practiced in these issues. My endo keeps track of my TSH and as he says, it's "spot on".

I pretty much always go to a specialist when I have anything that can be better treated by one. That's what they're there for.
JK