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7% Saline Solution

MAC & Bronchiectasis | Last Active: Mar 30, 2022 | Replies (242)

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@auntnanny

sueinmn --- thank you for the info. I have not been rinsing between products. I started out doing that and finally just kind of shake out remaining drop or two and then pour in next one. I do saline, albuterol, Yupalri, Perforomist and buseidone (sp) would have to go look at spelling. It's working pretty well and I take one azithromicin 3 times weekly. Mayo doctor would prefer I not take it but local pulmonologist wanted me to. It has stopped the incessant coughing but he doesn't want me to become immune to it. So..... a catch 22....... have you had this experience or know of someone who has? I wonder how detrimental it will be if I'm not totally rinsing between meds.

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Replies to "sueinmn --- thank you for the info. I have not been rinsing between products. I started..."

I would guess that not rinsing between products is just fine, especially because some of these meds are combined at times in a single inhaler. That's a long list of nebs - no wonder you're trying to cut down on the time it takes!

I am not a doc, so can't say about the azithromycin for you, but both my pulmo and ID docs were adamant about not using it singly or for other infections due to the possibility of the MAC becoming resistant to it. The ID doc said he wishes it was treated as a drug of last resort because he said many other "bugs" are also becoming resistant, and they don't really have a safe, proven "next best thing." I think many docs prescribe it for every kind of infection because it is pretty easy to get patient compliance - 3 or 5 days and done, as opposed to many which need to be taken multiple times a day for 14-21 days, and people stop when they "feel better" even though still infected.

If your cough is gone, maybe you could talk about stopping and seeing what happens?

Sue

Hello Jan! I cannot believe that you finally got rid of that nagging cough. You have been trying to get rid of it for yrs now. Congrats! What Sue said about the azithromycin is true and is what my drs at Mayo have been saying as well. For as long as you have been fighting this, perhaps you are at your last resort of meds to try. I will be praying that this is what works for you, and that you get the reprieve from mac that I did. Stay the fight, you are winning!