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I had a similar experience with my last respirologist. He prescribed the big 3 but nothing else. I think he might just not have been up-to-date on how to treat the disease. He said more than once that he wasn’t an expert on treating Mac but got defensive when I asked for a referral to someone with more expertise in treating Mac (my GP finally made the referral).
I am seeing a new respirologist now and using a nebulizer with saline and an Aerobika and making lifestyle changes to support treatment and general health.
I can’t say enough about how important it is to find doctors who really know how to treat this disease. I regret that I didn’t do that sooner as I’ve lost some hearing and have other lingering issues as a result of medication side effects.
Good luck in sorting this out!
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@kathyhg and @suenfl My Pulmonologist went beyond getting defensive when I asked to consult an Infectious Disease specialist when my MAC treatment wasn't working - HE fired ME! Possibly one of the best things that has happened to me with this stupid disease - I now have a much better Pulmo who actually listens to me, backed off my meds, and prescribed 7% saline (original guy also said No to this.) If you don't feel comfortable with any physician, it's time to find a different one, and one well-versed in your condition.
Come back to the group with your location, you're almost sure to get a recommendation...Sue