← Return to Gabapentin side effects?

Discussion

Gabapentin side effects?

Chronic Pain | Last Active: 4 days ago | Replies (849)

Comment receiving replies
@pfbacon

I have Axonal Sensory Neuropathy. My Neurologist explained: "Your nervous system is dying. It dies at the small ends near the skin first, then works its way up the thicker stems in your limbs to the main stem in the spine. As it dies, it misfires and works erratically. The nervous system is supposed to notify the brain when something is damaging the body so that the brain can direct the hand or foot or whichever is the right tool, to remove the body from the object causing the damage. The nervous system starts sending faulty messages of pain here and numbness there. Anti-seizure medications, such as gabapentin and lyrica, calm the nervous system so that it stops sending the erroneous messages for hours at a time. We have no medicine that can actually stop the progression of the death of the nervous system, or repair it, at this time." In further conversations with my neurologist and with my pain specialist, I gathered that as the condition progresses, I will need more and more medicine, until I'm at the limit of what doctors are allowed (by politicians) to prescribe. Then, I will have to start using narcotic pain killers. There are some members of this loop who have been on pain killers for awhile. Those meds also have to be increased progressively as the pain worsens with the condition. I wish my nervous system would send me false messages of pleasure instead of telling me that I'm standing in a bonfire with wasps attacking my arms when I see no fire or wasps anywhere around. Peggy

Jump to this post


Replies to "I have Axonal Sensory Neuropathy. My Neurologist explained: "Your nervous system is dying. It dies at..."

I think that sounds pretty miserable and I send much sympathy for what you must be tolerating. As someone who used narcotics over a period of approx. ten years, I will just say that for the right patient in the right dose, they can work wonders. Don’t be afraid of them. Now the biggest problem is getting them prescribed, though at least you have a definitive diagnosis. That should help you in obtaining prescriptions when the time comes.

@pfbacon I feel for you! My pain is bad enough for me ...! 😦