Gabapentin side effects?

Posted by Sundance(RB) @sundance6, Apr 13, 2019

I am a regular on the Mayo Board! I don't know what I would do without it! Our doctors don't want to discuss openly the things about illnesses and side effets of drugs and other things. Anyway, my question to all of you is Gabapentin and it's side effects. I have been on it now for 6 months. My doctor raised me from 100mg. to now I am on 400mg. three times a day.
The problem is my tiredness! I happen to be in a friends office yesterday and she was taking some medicine. She said she was taking Gabapentin. I asked why and she said she had, had shingles back when and it still helped with the pain. I know the drug is percribed for many things that is why I take it for my issues.
I told her I had been taking it for about 6 months. She asked if I had been tired all the time, just out of the Blue. OF COURSE I SAID YES! She said it took her a year before she got out of the tiredness.
Let me know if any of you have experienced the same thing. Also let me know at what dosage you may be on? I know this is all confidential!
Again Thanks to The Mayo Clinic and Everyone who is kind enough to be open with their lives!
Sundance!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@wsh66

You must not have heard, pain is no longer a problem. It doesn't exist. They don't really have to do anything for you. It's the answer to the opioid crisis. They can't get ahold of the drug addicts and the dealers to deal with them so they're dealing with you. Congratulations you and I and people like us are what it's called low-hanging fruit.

Jump to this post

You are so right. It stinks, this new take on severe continuous pain. I deal with it every day since breaking my back. My reporting of unrelenting pain falls on deaf ears.

REPLY
@wsh66

I am appalled that he was given those drugs for cancer pain. I was given Lyrica for the tingling in my feet caused by large doses of chemo. I was in a very compromised situation when this happened, not thinking clearly and definitely experiencing "chemo brain". Lyrica is really expensive and they know damn well it doesn't do much for pain. Lyrica is no better than gabapentin but costs much more. What is really insidious about the scam is that if you take 25 mgs. per day and I take 1200 mgs. per day, which was my actual dose,m we both pay the same price. There is no relationship between how much you use and what you pay. You pay for the privilege of using the drug. Lyrica was instrumental in inspiring the now common term among honest Doctors and Pharmacists, "There are no new drugs, just new names. The thing with pain is that it can really vary in intensity from day to day based on your activity, your mood and the amount of stress you are experiencing due to Medical personnel treating you like a drug addict. It's one thing to pull this smoke and mirrors game on someone with a bad back but to do it to someone with cancer is absolutely unconscionable. Most things like off label uses for drugs that don't work for pain, CBD oil, stretching, meditation, back braces and all forms of electrical stimulation are mostly snake oil and lies that at best will trigger a placebo effect, which can be very helpful but there are better, more effective and cheaper ways to use the placebo effect to improve your health. I am treated for chronic and persistent pain resulting from cancer by one of this countries most respected authorities on pain treatment and deep brain stimulation. According to him, implanted stimulation works for some people with back pain, the rest of it is a bunch of b.s. I saw him yesterday to have my intrathecal pain pump refilled. A little ritual we repeat every 12 weeks. I get the miniscule dose of 3.5 mgs. per day of hydromorphone. It has the effect of about 1000 mgs. taken orally. It has the side effects of 3.5 mgs. or no side effects at all. No sleepiness, no constipation and certainly doesn't get me high. The patient is beyond the suspicion of half assed doctors and nurses who think anyone on pain meds is a drug abuser. That's the best part right there. The availability of these pumps is increasing and just about all insurance and medicare pay for them. I don't think the availability will continue to increase as the number of Medical students pursuing the field of pain management is dropping. When the truth is known about the opioid crisis it will be revealed that the manufacturers were selling these drugs out the back door to organized crime and that well meaning doctors were not the cause. That's what we learned about Quaaludes in the 1970's. If you don't use opioids to get high, you don't experience the euphoria they can create and you do not get addicted. Truth, Love and Blessings

Jump to this post

You spoke the truth. Thank you!

REPLY
@mariah1

You are so right. It stinks, this new take on severe continuous pain. I deal with it every day since breaking my back. My reporting of unrelenting pain falls on deaf ears.

Jump to this post

We cannot back down in the face of this. If you have someone prescribing pain meds and they decide they don't want to do that anymore they are legally responsible to find another prescriber. We need to stand fast and sue if that is what it takes. We are not the opioid problem and our doctors didn't cause it. When they quote you the body count know that over half of it is from Heroin, Meth and other street drugs. Also most of the opioid overdoses are caused by counterfeit pills being sold by drug gangs from around the world. They mix them with fentanyl which is impossibly hard to titrate into the doses they are going for. The government cant get at these dealers or in some cases are being paid off by these dealers so they come for us and our Doctors. Wr are the low hanging fruit. Repost: WE ARE NOT THE PROBLEM. Paint in on the pharmacy walls: WE ARE NOT THE PROBLEM!!!

REPLY
@lisakuehl

I'm not sure I understand what "nerve pain" is. ALL pain is rooted in the nerves that serve a particular part of the body.

Jump to this post

@lisakeuhl - If you don't know what 'nerve pain' is, consider yourself lucky. I have Small Fibre Neuropathy, and when it is not under control the pain is all-consuming. I experience burning pain in my feet (Burning Foot Syndrome) with occasional stabbing pain that feels like someone is jabbing a skewer into my feet. I have been on Gabapentin for about 4 months - and it DOES work to calm the nerve pain. It does not cure the underlying nerve damage, but it reduces the pain. I can now walk without wanting to cry. I can keep my feet still while I sit. I can sleep without waking up due to the pain, and I no longer keep pain meds on my night stand.

The drug is far from perfect. I have been playing with the dosage, and for the time being I am holding at 200 mg/day - which is extremely low. I supplement with OTC pain meds. My dosage is low because in higher amounts, it has caused night time anxiety - but that did not start to happen until my brother died 2 months ago, so perhaps that is what is causing the anxiety. Time will tell, as I will likely increase the dosage at some point so I can hopefully reduce the amount of OTC drugs I am taking every day.

REPLY
@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

Jump to this post

I too have nerve pain. It comes and goes. Sometimes it's unbearable, sometimes it is absent. I took lyrica, up to 1200 mgs. per day for 3 years. When I stopped, I noticed no difference. I still have the pain, no more no less than when on lyrica. I had a similar experience with Neurontin, a very similar forerunner to lyrica. The really hard thing about pain and knowing what does and doesn't work is the way it can come and go. It's absence often leads us to believe something we did worked. Often that is th3e case but you can never be sure without carefully analyzing the frequency of pain and what contributing factors affect you. Anxiety, depression, stress, exercise, diet and other health issues are only a few factors that go into the equation. Never forget what the medical community refers to and often dismisses is the "placebo effect". I have practiced Qigong for many years and I know the body has some ability to heal itself given the right mindset. I also believe that the "placebo effect " is really a reflection of that ability. Don't sell it short. Your belief that what you are doing will help you is of the utmost importance no matter what you do or take.

REPLY
@wsh66

I too have nerve pain. It comes and goes. Sometimes it's unbearable, sometimes it is absent. I took lyrica, up to 1200 mgs. per day for 3 years. When I stopped, I noticed no difference. I still have the pain, no more no less than when on lyrica. I had a similar experience with Neurontin, a very similar forerunner to lyrica. The really hard thing about pain and knowing what does and doesn't work is the way it can come and go. It's absence often leads us to believe something we did worked. Often that is th3e case but you can never be sure without carefully analyzing the frequency of pain and what contributing factors affect you. Anxiety, depression, stress, exercise, diet and other health issues are only a few factors that go into the equation. Never forget what the medical community refers to and often dismisses is the "placebo effect". I have practiced Qigong for many years and I know the body has some ability to heal itself given the right mindset. I also believe that the "placebo effect " is really a reflection of that ability. Don't sell it short. Your belief that what you are doing will help you is of the utmost importance no matter what you do or take.

Jump to this post

You have spoken very powerful words. Thank you for presenting them with such truth and honesty. I'm always pleased when someone else articulates my thoughts!
Hope you are well today.
~Rachel

REPLY
@iceblue

@lisakeuhl - If you don't know what 'nerve pain' is, consider yourself lucky. I have Small Fibre Neuropathy, and when it is not under control the pain is all-consuming. I experience burning pain in my feet (Burning Foot Syndrome) with occasional stabbing pain that feels like someone is jabbing a skewer into my feet. I have been on Gabapentin for about 4 months - and it DOES work to calm the nerve pain. It does not cure the underlying nerve damage, but it reduces the pain. I can now walk without wanting to cry. I can keep my feet still while I sit. I can sleep without waking up due to the pain, and I no longer keep pain meds on my night stand.

The drug is far from perfect. I have been playing with the dosage, and for the time being I am holding at 200 mg/day - which is extremely low. I supplement with OTC pain meds. My dosage is low because in higher amounts, it has caused night time anxiety - but that did not start to happen until my brother died 2 months ago, so perhaps that is what is causing the anxiety. Time will tell, as I will likely increase the dosage at some point so I can hopefully reduce the amount of OTC drugs I am taking every day.

Jump to this post

I take 2300 mg of gabapentin daily for nerve pain and no relief I’m about to throw it away

REPLY
@vklittle61

I take 2300 mg of gabapentin daily for nerve pain and no relief I’m about to throw it away

Jump to this post

Yikes!!! I am curious to know how long you have been on Gabapentin. And do you have any side effects from taking that amount?

REPLY
@spondi64

<p>My Dr prescribed Gabapentin 300mg caps last Friday. I took one at bedtime & woke up at 3:30a.m. in horrible pain. Has anyone else experenced anything like this?</p>

Jump to this post

I made an error it’s 2400 and I guess about a year I don’t see any improvements but doc says to keep taking it I’m Still in excruciating pain while taking it so what’s the point side effects I believe are I feel like my joints are getting weaker

REPLY
@vklittle61

I made an error it’s 2400 and I guess about a year I don’t see any improvements but doc says to keep taking it I’m Still in excruciating pain while taking it so what’s the point side effects I believe are I feel like my joints are getting weaker

Jump to this post

Hello. I feel awful for you and understand completely your frustration of not receiving adequate pain relief. I suffer from Small Fiber Polyneuropathy and back when it all started, my pain was unmanageable. My PCP is who agreed to 5mg of hydrocodone. For me, it took alot of game playing between Gaba and Lyrica. I finally landed on Lyrica which I now tolerate well. The thing is...one medication does not always do enough. Do you have a PCP? Can you pull them into your pain management plan? It sounds as if you really need additional help. Opiods are a huge challenge as you may know and Drs do not want to push them now a days. Maybe there is another course if action that can help you. Medical marijuana perhaps, off label medications. Don't back down. If your pain is that severe, go to Urgent Care. All my best wishes for you to find the relief you need soon.
Rachel

REPLY
Please sign in or register to post a reply.