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Gluten intolerance and peripheral neuropathy

Neuropathy | Last Active: Mar 27, 2022 | Replies (22)

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@catro

My endocrinologist tested me for celiac and said the test was negative and i didn’t have sensitivity to gluten. But I have since learned that not having celiac disease does not mean you are not gluten sensitive and some tests for celiac don’t pick up all gluten sensitivity. Sensitivity to gluten definitely can be the underlying cause of PN. After being off of gluten for a time my PN had begun to be less of a problem, but last evening I slipped and ate a handful of cheese crackers that I later learned also contained wheat flour. My PN came back last night with a vengeance. I think the best test for whether gluten sensitivity is causing my PN is for me to go on and rigorously stay on a gluten free diet.

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Replies to "My endocrinologist tested me for celiac and said the test was negative and i didn’t have..."

@catro I think you answered your own question. I have never been tested for celiac because 20 years ago it was very controversial and doctors didn't believe in it, so I had to go with what my gut told me (literally) after eating foods. I figured it out piece by piece with an elimination diet and found I had a gluten problem. I also developed other food allergies presumably because the gluten exposure caused a leaky gut and let the partially digested foods into my blood stream. I had pain in my hands and joints that stopped when I figured out what foods to avoid. You have to read food labels, and it may be one ingredient that is an issue, and you can't tell unless you test one component. I tested wheat by eating some plain flour, and knew that was it. I was also allergic to eggs, but later found out it was egg whites, and not the yolk, so I can hard boil an egg and eat the yolk. Sometimes testing isn't completely accurate, and it may depend on how long or how recently you were eating the gluten, and if your body would have mounted an immune response in that time period.