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Collagenous Gastritis: What treatment(s) work for you?
Digestive Health | Last Active: Aug 5 1:34pm | Replies (46)Comment receiving replies
@oakbourne - You have a double Whammy- 2 autoimmune diseases! Sorry you had celiac growing up. Did it affect your growth? As far as I’m aware, children were not routinely tested for celiac until some years ago- adults too. In my home country Sweden celiac is much more common.
My colitis started 12/08. I also spent time not more than 5 feet from the bathroom. I got very dehydrated. I was diagnosed after a couple of months and given methotrexate for 4 weeks. Diarrhea stopped, but I continued with other symptoms. I was tested for everything at Mayo. Still some diffuse inflammation. Also given Cholestyramine. Budesonide worked best - actually Prednisone was a dream, but couldn’t take it long term. Peptobismol always helped me, still does.
By 2015 I felt sick all the time. I wanted to try Imuran- immunosuppressive. Took it for 7 moths and I was healed- however, it’s risky because I did develop several bacterial infections andbefote I stopped my blood count was low.
I still have to be careful eating out- mostly because I don’t tolerate fat.
Replies to "@oakbourne - You have a double Whammy- 2 autoimmune diseases! Sorry you had celiac growing up...."
I had microscopic colitis diagnosed about 2 years ago after a 7 month journey starting with a yersinia infection, treated with Bactrim that left a C-Diff infection and treatment for THAT, I had a colonoscopy that confirmed collagenous colitis. Budesonide was a miracle drug. I did a 9 week tapering course and went back to my life.
All was good until I had bilateral cataract surgery in April&May and was on a month long course of an ocular NSAID 4 times a day. But it’s eye drops! I know that ibuprofen is a trigger for me, as are PPIs. But my colitis relapsed and this time the Budesonide isn't working. Maybe it was the ocular eyedrops and maybe it was who knows what. But although a lot of pepto bismol capsules can give me enough relief to grocery shop or go to a Doctor appointment, it’s like having my finger in a dam.
I see my doc tomorrow to hear his thoughts. I have tapered off Budesonide so I can go in any treatment direction.
But I have an issue w/Budesonide in that it has stained my teeth really yellow. Has anyone else experienced that?? I saw my dentist today and they are calling drug manufacturer but she thinks it is intrinsic - like gray teeth from tetracycline.
This is the gift that just keeps giving. 🙄
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Thanks for your response. No, the silent Celiac Disease did not stunt my growth. I grew like a weed till I turned fourteen. I was always feeling sick. Some days were good and some not good. My brain would work one day and not work the next. I had no idea what was wrong with me.Plus the histamine foods. I would get a runny nose and congestion. I have Scandinavian blood in my veins too. Quite a few ancestors from Norway and Denmark. A few from Sweden. Ahh, to be Swedish! Lucky you! The girls are beautiful in Sweden.My husband and I just stared at the girls. They're gorgeous! Plus the guys are handsome too. Good looking people for sure.
I refuse to take medication. Drugs have side effects so I take minimal medications. Prednisone and all it's side effects will destroy your bones and you can develop cataracts. Every drug has a side effect. Prednisone is a horrible drug that doctors give out like candy but won't give it to their own children. I think diet is the key! It is for me!