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Apparatus for Neuropathy

Neuropathy | Last Active: Sep 16, 2020 | Replies (84)

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@rwinney

Hello David and thank you for responding to my questions. It's always good to learn of others experiences with neuropathy and all of it's varieties. It seems you rely on and accept use of apparatus based on necessity. I'm curious if you are able to drive???

This winter, the only semi comfort on my feet are Ugg boots. I wear Muk Luk slipper boots and on occasion Uggs inside if need be. Currently, I am searching out a therapeutic cushioned tub mat. Showering is difficult all around and not pleasurable any more. Bars are great ideas for balance. Luckily no balance issues as of now. There are folks on the forum who have positive results from spinal cord simulators.

I find this disease to be so confusing. For instance, during the time I was receiving lidocaine infusions, my legs had begun a decline simultaneously. When new symptoms arise...I don't know if it's strange side effects from a treatment or strange new neuropathy symptoms. I have not tried fentanyl patches but thank you for the idea.

I still don't fully grasp how one gets diagnosed with more specific neuropathy such as autonomic or motor? My Dr is one of very little words but I will find out after blood results are back.

I'm curious if anyone requests their medical doctors notes? Well, I did for last year and it's so interesting to read! Found out I'm a "PITA" patient, in not so many words. Because I have mentioned this Neuropathy forum to my Dr., and some things I've learned from it, my notes actually state that I'm in "online chat groups!". Hahaha...I found this humorous. How they must talk about us behind our backs simply because we present our knowledge and findings. I guess I get both sides, to an extent but, don't mess with my Mayo Connect forum and down play it to a CHAT GROUP! This here is counseling, support and encouragement without a co-pay! 👍🏼

All the best to you David. Be well.
Rachel

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Replies to "Hello David and thank you for responding to my questions. It's always good to learn of..."

Hi Rachel. thank you for your kind words. I do not enjoy driving anymore. I can drive but pressing the brake or gas will make my feet hurt more. I usually ask my sister or brother to drive me to doctors appointments. I have gotten great at ordering things on line. I will drive when I absolutely need to but avoid it as much as possible. Your question about neuropathy. My understanding is that there are many flavors. Its an extensive topic. My understanding is that motor (muscle) neuropathy is best diagnosed through the EMG/NCS testing, and clinical exam. Autonomic neuropathy can be diagnosed through the use of the tilt table and sweat testing but maybe just by asking how are the nerves doing that control your bowels,heart rate ,blood pressure or sweating. (think of someone who has long standing diabetes) I have learned a lot from this forum. Continue to be an advocate for yourself, be a PITA because that seems to be what it takes to get movement,to get change,to get answers. The forum stays. Best, David