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Hi, these are great questions and I am experiencing same as you. My Diabetic PN happened quickly and at the same time I had post herpetic neuralgia pains followed by a second full on shingles outbreak. Although I am sure years of high glucose caused me the problem I am suspect of the timing finding it very coincidental and feel shingles is at least partly responsible for my PN. Anyways, my feet pain and numbness etc have improved very much in the past 2 months, although still with me all the time I would call it 1-2 on the pain scale. My problem is similar to yours as described I am still left with complete weakness in my knees and lower legs to walk around. I believe I have good leg strength but still just a feeling of weakness. It never improves just there all the time. My doctor put me on Gabapentin just yesterday and explained this would help fire the nerves and improve the weakness? Any one have experienced this.
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@ecc79
Sounds like you were hit with several serious things at once.
I don't feel weakness all the time. I guess that the fear of waiting for the other shoe to drop, as the saying goes. Falling down with no warning is disconcerting. I can just stand back up and go on with what I was doing. I don't feel anything unusual when it happens, so it's hard to describe. I don't know if it's treatable because of the randomness. I just hope it doesn't get any worse.
I have a friend from college who was a missionary in Brazil until his legs started giving out on him. He went to many doctors and couldn't get a diagnosis until he went to Mayo in Rochester where he was finally diagnosed with neuropathy. By then he was using a walker, which must have been a sight - he's tall at around 6'6". From my limited knowledge, the muscle weakness is just one of many signs of autonomic neuropathy. I don't know what medications are prescribed for that, but there is a plethora of meds used for peripheral neuropathy. Neither neuropathy is anything to laugh about.
Jim