← Return to Apparatus for Neuropathy

Discussion

Apparatus for Neuropathy

Neuropathy | Last Active: Sep 16, 2020 | Replies (84)

Comment receiving replies
@jimhd

@rwinney Have you been tested for autonomic neuropathy? The neuro specialist at Oregon Health Sciences Hospital confirmed the diagnosis of small fiber polyneuropathy that the local neurologist had already diagnosed. But they observed the early stages of autonomic neuropathy, which could likely explain a number of problems I have. Sometimes I lose my balance, when I stand up or turn left or right when I'm just beginning to move, diplopia, swallowing problems, reflux, tinnitus, sudden loss of knee muscles that puts me on the ground, ED, sudden urinary urgency, and feeling off balance when I'm walking and look at the ground in front of me or when I walk up or down the aisle at church. The floor tapers like a theater. And because of the taper, when I stand it puts the pressure on the balls of my feet, so I stay seated because the worst pain is in the balls of my feet. When I stand up and turn to go up the aisle I have to make myself pause and hang on to the back of my chair. I failed to be careful one time and suddenly sat down in someone's lap. Oops!

For me, it's important to know what's happening in my body. If I can understand it, it seems to reduce the stress and fear.

Jim

Jump to this post


Replies to "@rwinney Have you been tested for autonomic neuropathy? The neuro specialist at Oregon Health Sciences Hospital..."

Thank you Jim. Your examples are clear and very helpful. I've given it thought lately and naturally, have been researching. I've had some odd happenings such as swallowing problems (food sticks and it takes a few swallows or drink to get it down), hurrying to the bathroom (urine only) and muscle weakness. Thanks for bringing up your symptoms or I would have forgotten the swallowing trouble as it hasn't happened in a couple weeks. So bizarre how some things come and go, heighten and fade, others are permanent No rhyme, no reason. Certainly gives meaning to take each day as it comes.
Hope your day has gone well today.
Rachel

No I have not been tested yet. I see my Neurologist Wed and have my list ready!