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Anyone out there heard of Adrenoleukodystrophy (ALD)?
Brain & Nervous System | Last Active: Jan 8, 2020 | Replies (19)Comment receiving replies
Thank you so much for responding to my text.It is with your chromosomes. There is no cure for it. My brother passed on 65 years ago and they knew nothing about it. I also lost my son 10 years ago,he had cerebral Ald which affects the brain. I have the neuropathy part which I have a gait and balance.My sister is in a wheelchair and she had a colostomy. I have a son that has ed with it and other family members. I pray that there will be a cure soon. I took my son to Kennedy Kreiger and they diagnosed him I f anyone has any insight about it I would be open to anything. I pray.
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I would say I'm sorry but I'm pretty sure you hear a lot of that just like I do. All I can say is hang in there you have a lot on your shoulders just like me. I bet you me and you are a lot alike because we take care of everything and I mean everything. So I know exactly what you're going through. If you ever want to message me Montauk you're more than welcome to. I know the struggles of everyday life and every day is different.