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Anyone out there heard of Adrenoleukodystrophy (ALD)?

Brain & Nervous System | Last Active: Jan 8, 2020 | Replies (19)
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@beverlymarks

Has anyone tried hyperbaric chamber for any of these problems. I have been reading alot about hyperbaric chambers. Produces more red blood cells.

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Replies to "Has anyone tried hyperbaric chamber for any of these problems. I have been reading alot about..."
Colleen Young, Connect Director | @colleenyoung | Jan 5, 2020

Hi @beverlymarks, Connect is an online community where you can connect with other patients and people with similar conditions. I noticed that you titled your discussion "Medical Coordiator". I believe that you meant to post it to this discussion you started about ALD. I've moved the messages together so we can help form a group of members talking about adrenoleukodystrophy.

Here's information about Hyperbaric oxygen therapy from Mayo Clinic https://www.mayoclinic.org/tests-procedures/hyperbaric-oxygen-therapy/about/pac-20394380

What have you been learning about hyperbaric oxygen therapy in relationship to ALD?

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Lisa Lucier, Moderator | @lisalucier | Jan 8, 2020

A few members on Connect who've mentioned hyperbaric oxygen therapy may have some input for you on this treatment in general. @shwetha @thompsonm mentioned it for treatment of hypoxic ischemic encephalopathy, and @ndttech @ericvnelson @navid80 mentioned it in the context of neuropathy. @johnbishop may also have some input.

Have you read about treatment of adrenoleukodystrophy (ALD) specifically with hyperbaric oxygen therapy, @beverlymarks? If so, what were your thoughts from what you read?

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