I have heard of it but I can’t say that I really know anything about it other than it has something to do with the X chromosome and that patients have seizures sometimes. Have you had any seizures.
I don’t know any doctors who specialize in
Adrenoleukodystrophy but I’d strongly recommend going to the Mayo Clinic. I don’t think you can beat it.
You have my best wishes, prayers, and my blessings.