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@goldleaf

I would be telling you a lie if you think this about me. The reality is I have no choice if I want to survive this. I also am aware of something that I have gathered from all the posts I have read here and my own experiences with Central Sensitization Syndrome. Stress and stressful situations cause health problems all by itself. One of the major problems with this syndrome is hypersensitivity to everything about the central nervous system. Since this in its self will do me in, and it does increase the pain I am in, I have to deal with it intelligently. For someone like me, with all the years of hate and anger built up in me along the way, it is nearly impossible now. I am making the effort anyway. I have found that I can no longer do that the same way other people can. I have tried all those avenues. The neurologist I see is a practicing Buddhist and an expert at meditation. We have had many heated discussions about this very good method of calming. I have also practiced this for many years myself. The reality is I can’t do this with the degree of pain and anger I have. So I have had to adapt to a different way. I would call it a mixture of everything I know. I am still working on that. I would like to make a suggestion and if you think this might help someone else use it. I look up to very few people. I have very little interest in heroes or what people would consider as heroes. There are so very few people that I know who I would consider good. If I would do that, the youngest of us, children, especially children with genetic illnesses, would be first on my list. We are adults with a lot of life’s experiences and they have none. Their only experiences are pain. They see things in black and white with no gray areas. We have a lot of those gray areas that influence are thoughts. I have 5 grandchildren, so I am use to the way they see an answer questions. If you want to see how to deal with pain talk to them. Go to a children’s hospital and see how they deal with that and their lives. You would get a very true full and realistic answer. I have had lots of conversations with my grandchildren and they have always said something that has humbled me. They are very wise. It is just a suggestion.

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Replies to "I would be telling you a lie if you think this about me. The reality is..."

@goldleaf Children truly are remarkable, and inspirational. I am always amazed and impressed at how those who have horrible medical conditions can be so cheerful. We really can learn from them.
JK

I don't know where to begin other than to say I feel the exact same way. Holding everything in and having anger that I can't let out. In the past two years I started seeing a therapist and she made a couple of suggestions. I don't know if you would agree with these suggestions but it helped with me. Doing meditation does not get anger out. Painting does not get anger out. But here in Texas where I'm from going to a shooting range helps getd the anger out. Don't ask me why cuz I don't know how the mind works. But doing something like that and or kickboxing and or doing something physical helps. But like I said that's my opinion and I know a lot of people did not agree with my opinion. It all depends on where your mind is. Some people shouldn't be doing those things. My husband is in a hundred percent pain everyday every night and he says the adrenaline rush is what helps make the pain go to the back of your mind. Even 4 hours after you're done. But he's Ex black ops so he likes shooting.