I had an appointment at Cleveland Clinic with a neuromuscular specialist. It was surprisingly one of the worst experiences I have had with a physician. He was dismissive, condescending and uncompassionate to my suffering. I will continue to see my current neurologist but my muscle pain and weakness continues to worsen. I have an appointment with a spinal neurosurgeon in May. And my hematologist as referred me to a gastroenterologist. I currently have vitamin b12 and iron deficiency. My thoracic MRI showed some bulging discs but no spinal cord involvement. I'm not sure what the surgeon will say regarding the discs. My blood work also showed a positive RA factor.

I'm scheduled for my regular appt with the movement specialist in April. I'm hoping that he will agree to an MRI of the brain as its been two years to check for changes. I also want to be tested for lyme disease.

I'm very discouraged and wondering if I will be living with these symptoms for the rest of my life. It is very depressing.