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undiagnosed movement disorder

Brain & Nervous System | Last Active: Apr 19, 2023 | Replies (108)

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@barbbie

Wow! Your symptoms come closest to mine as I have ever read. In a span of 7 years I had 3 concussions with the last leaving me without a memory of falling, knocked out for about 5 minutes, postconcussion headaches, followed by a body wide increase in muscle contractions that started after my 2nd concussion, and then essential myoclonus. This has been going on since 1999. I take klonopin for the myoclonus. My muscles are tight but when I have an episode, generally started by someone touching or injecting around my right shoulder area, contortion is a good word for a description of the visual. Just had a bout at pain management that lasted over an hour. Time is all that helps resolve it as I am allergic to so many meds. I have been told they are all in my head and I am anxious. I deny either, well I 'm pretty sure the head injuries are responsible but that's not what they mean when they say all in my head. I find both myoclonus and sustained contractures exhausting and moderately painful compared to my other pain issues.

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Replies to "Wow! Your symptoms come closest to mine as I have ever read. In a span of..."

I too am allergic to many meds. Don
I've only had one mild concussion in my life. Never thought of it but it was months before this started!

Ps I’m sorry for your pain. So far I don’t have any

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