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undiagnosed movement disorder

Brain & Nervous System | Last Active: Apr 19, 2023 | Replies (108)

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@beth11

Hi @birdierobin I'm currently waiting for word from Cleveland clinic regarding an appointment with a neuromuscular specialist. My current dr. has been diligent but unable to pinpoint a cause for my symptoms. And the baclofen only helps marginally regarding the muscle spasticity. I'm beginning to have pain in my feet and ankles due to the contraction of my toes and arching feet. Are you on medications for Parkinson's?

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Replies to "Hi @birdierobin I'm currently waiting for word from Cleveland clinic regarding an appointment with a neuromuscular..."

I got my appt at Mayo! Its March 24th

They want me on meds but I don’t like the side effects and I’m not gonna take them without a second opinion because the other things that they think I have one responder the medicine so I may be taking it for nothing so I’m not taking anything currently and I won’t until I get a second opinion!

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