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undiagnosed movement disorder

Brain & Nervous System | Last Active: Apr 19, 2023 | Replies (108)

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@birdierobin

Hello. I too am new. I can barely walk or turn around, have fallen quite a few times. My speech is now affected and I have Urinary Inconsistency. Drs have been all over me for 5 years. MRI’s, CT scans, Brain Scans, just to name a few. They have been suspicious of MS, bone misalignment, Parkinson, Progressive Supra Nuclear Palatka, Multiple System Atrophy. All scary stuff. I am currently waiting on a Spring appt with Minnesota’s Mayo Clinic. A friend just introduced NPH, Normal Pressure Hydrocephalus to me and I fit the symptoms 100%. This gave me some hope again. Anyone familiar?

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Replies to "Hello. I too am new. I can barely walk or turn around, have fallen quite a..."

Hi @birdierobin I'm currently waiting for word from Cleveland clinic regarding an appointment with a neuromuscular specialist. My current dr. has been diligent but unable to pinpoint a cause for my symptoms. And the baclofen only helps marginally regarding the muscle spasticity. I'm beginning to have pain in my feet and ankles due to the contraction of my toes and arching feet. Are you on medications for Parkinson's?