← Return to undiagnosed movement disorder
Discussion
Brain & Nervous System | Last Active: Apr 19, 2023 | Replies (108)
Comment receiving replies
Replies to "It's hardest thing not understanding why your going through this difficult time, being in limbo we..."
I understand your frustration a lot. Hang in there! Its a long journey......
Thank you @swift. I don't have mercury fillings...I've been in limbo for about a year and a half. My symptoms and neurological exams show a neurological problem but the specialists have not been able to determine a cause. Therefore, I continue to go through various tests to rule out causes. Its the way neurological medicine works. I get it, but in the mean time my quality of life continues to suffer. I have recently completed a Masters degree in environmental law & policy. Unfortunately, I feel frozen in my job search as I can barely walk. The fatigue, muscle weakness, and spasticity are so unpredictable. How can I possibly maintain a typical 40 hour a week job when I can't drive, can't stand/walk for normal periods of time? I can't qualify for disability without a diagnosis. I have six months until my students loans begin being charged...it's all a bit depressing and there's no where to go for help. I share this not to be negative but just to share the truth. I'm sure there are countless others in the same situation. My iron infusion was a complete train wreck because of insurance loopholes and policy. From my perspective I just want a diagnosis and treatment. It shouldn't be this hard for anyone.