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undiagnosed movement disorder

Brain & Nervous System | Last Active: Apr 19, 2023 | Replies (108)

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@beth11

Happy New Year's everyone! I have been referred to a hematologist/oncologist for my anemia. Does anyone have any experience with diagnosis of iron anemia along with abnormal movement/muscle spasticity? It is complicating an already difficult diagnosis. I am hoping to have my iron infusion scheduled soon. There has been an almost 3 week delay from my insurance. Unfortunately, I have to constantly advocate for myself or simple things seem to fall through the cracks. Does this happen to others? What do you do? I am curious as to others experiences. It seems to be a widespread fact of life of the medical system in the US.

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Replies to "Happy New Year's everyone! I have been referred to a hematologist/oncologist for my anemia. Does anyone..."

Happy New Year Beth,I have not been to a hematologist. This is going to be my next. I am going through alot of different tests..I dont think I have exhausted all my Aves. I was told to go to Stanford in Calif. It all costs alot before I jump into something that I don't research. I don't want to close any door. I will keep you abreast if I find out that might help you also.. I hope you have a great New Year. God bless you