I respect what the neurologists offer in terms of their expertise, but there are limits to available knowledge and treatments and that can be very frustrating. My husband is a good advocate and we agree on the basics of what we expect in terms of care. Knowledge and patience are keys for me in order to stay positive and not give in to unhelpful thoughts such as all or nothing thinking, etc. Its not to say I'm never down but all things considered I continue to move forward and advocate for myself as much as possible. Its not always comfortable and challenges are there. Its part of the reason I'm here on this board. I'm looking for anyway forward. Even if the future is uncertain/unclear. I wish you comfort and healing.
Take care,
Beth