Good afternoon, @beth11 and @llsalucier. I have two of the myoclonus symptoms: "sleep starts" and toes that curl and cross over each other. There is no pain or discomfort.

The toes seem to just happen when I have done a bit too much walking or stretching. I sometimes have to reach down and "unlock" them.

"Sleep starts" happen to me almost every night. Some of these body jerks seem to be dependent on how my bed position places my neck and head. Once I get the pillow just right and my head and neck in the right angles, they stop.

I do have a question. You indicated that the Neurontin was not helping. Did you mean not helping with your pain or not helping with the "sleep starts"? When do you take the Neurontin and at what dosage? I take 1200 mg an hour before bedtime. I don't know if that medication helps with the movement issues. It does help with the small fiber neuropathy pain and allows me to sleep better.

And before I forget....welcome....to Connect. You are in good hands. May you be content and at ease. Chris