Hi Lisa thanks! I am doing okay mobility wise, except that I am not driving. My toes are curled under and feet arched unless I'm standing upright with my full weight and so it is not safe to drive right now. I don't walk distances such as shopping at Walmart (my husband gets that duty now!). I have some leg weakness now from not being very active and hyper reflexes in my legs, but my arm reflexes were a bit improved from last time. I am starting to have more pain in my feet/joints from the abnormal postures. What is very difficult is the full body muscle spasms. It feels as though every muscle in my body is engaged/active at times and has lately been affecting my breathing i.e. I am unable to take a full breath when it affects my midsection. I refuse to give up and continue to look for effective treatment. My husband has been very supportive and although we have difficult days, he has continued to encourage and support me at all my appointments/tests/hospital stays. I will say that I have thought about what it may look like in the future if I need more help/support. It has opened my eyes to those who suffer from decreased independence as I am frustrated with my lack of independence.
Beth

I have my feet jumping and no relief..I was.taking 900 mg of Neurontin and no relief. I was taken to the Emergency room I had a seizure was taken off Neurotin and Amprya. They will not let me drive. I was recommended to go to the Mayo clinic. At this point I want something more concrete. I have had 2 MRI's and not much difference.If anyone has similar problems please advise me.I am taking alot of supplements on my own. I feel like there is nothing to combat any issues.