Thyroid Cancer Group: Introduce yourself and connect with others

I was diagnosed with Follicator cell and Hurdle cell
Had biopsy's, positive. Had to put this on back burner due to a different type of cancer in breast.
Finally had thyroid surgery in November. It was a colossal mistake. So surgical outcome was awful and I have not selected a follow up treatment.

Hi, @nobody - sounds as though the November thyroid surgery you had did not have the outcome you were looking for. Will you share more about how that went and where things are at currently for you?

Hello, I’m Jesse a 49 year old male that was diagnosed with poorly differentiated thyroid cancer which also decided to venture to my lungs as well. I had my thyroid removed in August, followed up with iodine treatment and began clinical study BLU-667 in October. I’ve had two scan which have shown a reduction in size of the spots in my lungs and clear marks in neck.
I’m still trying to get used to not having a thyroid and taking oral chemo everyday. I have my ups and downs but everyday is another opportunity for me to rebuild, Grateful for the clinical study and my care team! Go BLU!!!!

Hello-my name is Bob and I have malignant neoplasms of the thyroid papillary.
I have gone thru 2 rounds of surgery and iodine. Now I’m starting round 3.
I have elevated markers and I get a biopsy the day after Christmas.

I had follicular and papillary cancer of the thyroid 20 years ago. I had a double entry done by Dr DE Joyner at Loyola hospital. I had radiation as a child and when I was in my 20''s they notified me that I was a risk for thyroid cancer. I watch it till my 60''s when I then got it. Had thyroid completely removed. I now have 3 meningiomas brain tumors.I had surgery for one. The others we are watching. They feel these tumors are related to the radiation.

I had 2 surgeries on my thyroid to remove it. You have to follow up with your Dr. To get the right dose of medication. Sometimes it takes awhile to regulate it
20 years with out a thyroid and I feel fine without it because I certainly followed my Dr orders.

last year at this time at 51 I was diagnosed with stage 2 Papillary thyroid carcinoma. I had surgery within 3 days as it was aggressively growing (was 3.2 when first found and 3 days later it was 4.9) my surgeons were amazing! I was sent for I-131 treatment but after 2nd thyrogen injection I had a severe allergic reaction so they halted the process and have been watching my numbers monthly. My surgeons were able to clean up my parathyroid and "transplant" it back in me and it is now functioning. It has been a hard long year but my numbers are still looking good, prepping for my whole body scan the old fashioned way, off the meds for 4-6 weeks and on lid diet. Glad cancer is out...and I'm alive and function again.

Hi. I’m Jane. May I ask where you were when you were exposed to radiation? Or other environmental exposures? I was at Fort McCellan
I currently have a radiation level of > 90% in tissues. Lots of severe allergies. Limited treatment. When I had they Thyroid surgery they sealed the incision with adhesive-glue.
I am allergic to the active ingredient. So sent me home ((3 Hour drive)). I was having issues breathing and within2 days my throat swelled shut. No airways open. Used epi 🖊
Took 7 days to get communication with the surgeon. So I guess I am really afraid to trust
I don’t know what to do. The unfortunate part is they clearly knew of the allergies and used it anyway also discharged me with the instructions to use an antibiotic that was also on my list of allergies. So any ideas?

Hi Jane,
I was in a children's hospital in Chicago when I was 11 years old. I am now 77. They use to give xray treatments for a growth on my neck. When I was 25 they notified me that I may get thyroid cancer and to watch it. I got Thyroid cancer when I was in my 60's. I have since had brain tumors and had surgery for one of them. They are meningiomas. The doctors at Mayo feel they are related to the radiation I had. I didn't have any allergies with the incision.

Thank you for the information. Sounds like you have had a very hard time over the years.
I hope and pray you are doing better.