← Return to Early Christmas gift - stopping the "Big 3"

Discussion

Early Christmas gift - stopping the "Big 3"

MAC & Bronchiectasis | Last Active: Jan 29, 2020 | Replies (27)
Comment receiving replies
@rits

Yes. Good luck Sue.
If you don't mind, what are your symptoms from long term antibiotics? I have been on 2 (couldn't tolerate rifampin) 3x per week since March. I am one of the lucky ones because I have been negative since June. The protocol requires that I continue on them until June but I am having more and more colon issues and wonder if the antibiotics have a cumulative effect or if something else is going on. Thanks for any info.

Jump to this post

Replies to "Yes. Good luck Sue. If you don't mind, what are your symptoms from long term antibiotics?..."
Sue, Volunteer Mentor | @sueinmn | Dec 19, 2019

@rits Mostly gut issues - stomach pain, frequent loose stools or actual diarrhea, nausea. Also fatigue & zero energy. It is worse if I fail to take probiotics and eat yogurt for a few days. It also got worse this summer when I had to start taking the meds daily. Both the ID doc and lung doc confirmed this week that the longer I am on the meds, the worse the symptoms are likely to be. It was a big part of the reason for stopping them now even though I have never converted to negative sputum cultures.
Do you use a probiotic and/or live-culture yogurt to help replenish the gut bacteria? Have you talked to your doctor(s) about possibility of stopping sooner than the 12-month mark?

VIEW AND REPLY