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Early Christmas gift - stopping the "Big 3"
MAC & Bronchiectasis | Last Active: Jan 29, 2020 | Replies (27)Comment receiving replies
Yes. Good luck Sue.
If you don't mind, what are your symptoms from long term antibiotics? I have been on 2 (couldn't tolerate rifampin) 3x per week since March. I am one of the lucky ones because I have been negative since June. The protocol requires that I continue on them until June but I am having more and more colon issues and wonder if the antibiotics have a cumulative effect or if something else is going on. Thanks for any info.
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@rits Mostly gut issues - stomach pain, frequent loose stools or actual diarrhea, nausea. Also fatigue & zero energy. It is worse if I fail to take probiotics and eat yogurt for a few days. It also got worse this summer when I had to start taking the meds daily. Both the ID doc and lung doc confirmed this week that the longer I am on the meds, the worse the symptoms are likely to be. It was a big part of the reason for stopping them now even though I have never converted to negative sputum cultures.
Do you use a probiotic and/or live-culture yogurt to help replenish the gut bacteria? Have you talked to your doctor(s) about possibility of stopping sooner than the 12-month mark?