I agree with you about attitude and willingness to listen. The first respirologist I saw was very confident in his approach to treating Mac and prescribed the big 3 to me. I was not familiar with the disease and started doing my own research and joined this forum.

I realized after a little while that he knew very little about Mac. I asked for a referral to a specialist for another opinion but he said I didn’t need another opinion because my illness was so straightforward. He was inaccessible when I had concerns and he would not work with my GP when I went to her with concerns. I found that I had to double check everything he prescribed or told me about the disease because of oversights. He discounted my concerns re side effects. I could go on and on.

At any rate, my GP referred me to a specialist and, when I told the respirologist, he was visibly angry with me and my GP.

I have sinced changed doctors and my new respirologist works with the Mac specialist to develop and monitor a very different care plan that is working much better than the previous one.

I guess my point is get second opinions and different doctors if you need to, do your own research and advocate for yourself if/when you have concerns. I don’t mean to carry on here but I really learned this the hard way.

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