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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Hi,
I’m Steve, 67, still working. I was diagnosed with PMR almost 6 years ago. I’ve had been on 2 mg of Preds for a while it seems to be my threshold. I just recently went up another half to 2.5 after some shoulder pains. What brought me to this site was I took the 1st dose of the Moderna vaccine for protection against COVID 19. I was good for about 4 days after the shot then came what seems to be a relapse of PMR. I thought that any side effects would be the next day after the vaccine. Just wondering if anyone has had PMR related side effects from the Moderna vaccine. I’m thankful the this site is available, it kinda lessens the effect of being stranded on the PMR island. Thanks in advance for any input.
Replies to "Hi, I’m Steve, 67, still working. I was diagnosed with PMR almost 6 years ago. I’ve..."
I'll be brief replying to Steve. 75 year old, male. 6 year with PMR
I have a parallel experience. PMR, 3mg pred. Moderna first, shot, 2 weeks ago.
Almost instant pain returned worse than before. Refused to beleive it could be vaccine so just limped around in pain from hips and knee. After 12 days I had enough. Moved up to 10mg Pred and relief in 5 hours. But now what? Clearly i will get down as best i can. In Canada here the 2nd jab is 4 months after the first.
The big question is the efficacy of the vaccine now that the connection between the Pred and the Vaccine has revealed itself. It's a bit late for me to go back for a degree in epidemiology.
I had the 1st Moderna Vax in late January and then had my first encounter with severe inflammation of shoulders and hips a few days later — diagnosis is PMR. I am curious if you went back for a second vaccination with Moderna? And if so, what happened?
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Hi Steve @josteman, Welcome to Mayo Clinic Connect. My PMR is currently in remission and I've had both Pfizer vaccines and the first Shingrix vaccine with minor side effects. The worst for me was day 2 after the 2nd Pfizer vaccine. I had extreme fatigue but it got better the next day. There is another discussion where members with PMR are discussing COVID vaccines and PMR.
PMR and Corona Virus (COVID-19) vaccine: https://connect.mayoclinic.org/discussion/pmr-and-corona-virus-vaccine/
Sorry to hear you haven't been able to taper off of prednisone for 6 years. My first occurrence lasted 3-1/2 years before I could taper off and then 6 years later it came out of remission and I was back on prednisone for another 1-1/2 years. Have you had a chance to discuss the PMR flare after the vaccine with your doctor or rheumatologist?