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@laurafin

The pre-diagnosis seems to fit, but who knows. So often these types of conditions mimic each other. It would sure be nice to get an answer. I have been tested for lupus, MS, and rheumatoid arthritis, both of which are negative. I have days of being so fatigued it is all I can do to get through the day to bedtime. I have days of feeling like I'm getting something (flu-ish or a cold, headache, sore eyes, feeling mildly ill, but it doesn't amount to anything). All of my first-degree family members had autoimmune diseases, and my naturopath has said that my body behaves as though I have an autoimmune disease, but it's just not been named yet. This most recent episode came on strongly in about October and I've been like a 900 year old person since. As mentioned in my original post, I am only 53 and typically very active and lithe, but lately I need help getting off the toilet. I don't want to have a disease or syndrome, but I sure would like an answer so that I can just deal with it already!

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Replies to "The pre-diagnosis seems to fit, but who knows. So often these types of conditions mimic each..."

I am sorry you are having to wait so long for a doctors appointment. I am on my 3rd bout of PMR and my first was in my 50’s. For me, prednisone has always cleared my symptoms. I was amazed the first time I took it. However, I have a friend who has PMR and now also has rheumatoid arthritis. For her, starting on prednisone helped her physician see what symptoms were from PMR and which were still there and due to something else. I hope you have good docs, as it seems like you have a constellation of symptoms that will need sorting out. And, as we all have discovered, you will need to become your own advocate. This group is really helpful.