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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Hello Alan @alanmp, Welcome to Connect. Thank you for sharing your experience with PMR. That first time it hits you does feel like your life is close to being over. I think you have the best mindset to deal with PMR. Lifestyle is key - stay active, eat healthy and take it one day at a time. I'm 77 and have had 2 bouts with PMR. First one in 2007 and it lasted until mid 2010 when I was finally able to taper off of prednisone with just minor aches. It stayed in remission until mid 2016 and I went back on prednisone for a year and half until I could again taper off with little or no pain. I'm hoping I never have to deal with it again but who knows so we just have to take it a day at a time, one step at a time.
If you don't mind my asking, what brought you to Connect? Were you searching for some answers?
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John,
The recent flare ups were a bit more severe than I'm used to. Had some time this morning, thought I'd search a bit for a forum or user group to see if anyone "out there" had similar experiences. Read your story and, to be honest, set me back. Thought maybe I was an outlier with still having issues almost a year and half later. Well, now I know better... And better to know than to wonder. As I said, I never get sick so this thing came as a real shock. OK, have to adjust a bit and hunker down for a longer term. Can do.
If there anything I can do to help with anyone else, please let me know.
Alan P