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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)
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@legendts

You are so right. If it wasn’t for this site I doubt I would have the understanding, or be able to manage my PMR as well as I am sure I will. Not sure what confidence I’ll have when I finally get to see a rheumatologist though. Arranged for an appointment to see one but cannot get to see her until mid June so that is why this site and all of your opinions count so much to me and I’m sure to others. Looks pretty much like a self managed regimen at the moment 😉😁.

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peggyp | @peggyp | Feb 28, 2021

I never saw a rheumatologist. My MD diagnosed me after consulting with my previous MD and came up with PMR after urging me to take 15 or 20 mgs prednisone (which I was afraid to take because of a previous allergic reaction for something else years ago). I took 15 mgs and immediately felt so much better. He was going to take me off pred at 2 years until I emailed him the 2017 Mayo/Matheson study on PMR and Prednisone. Since, then he has left my pred dosage up to me. I have also emailed him other studies re PMR. He now has more PMR patients, probably because he is more aware.

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