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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@kimh

I agree and that's why this site is so important in providing information (especially to the frustrated!) and support. We can't expect our specialists to know everything.

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Replies to "I agree and that's why this site is so important in providing information (especially to the..."
Jeff Down Under | @legendts | Feb 28, 2021

You are so right. If it wasn’t for this site I doubt I would have the understanding, or be able to manage my PMR as well as I am sure I will. Not sure what confidence I’ll have when I finally get to see a rheumatologist though. Arranged for an appointment to see one but cannot get to see her until mid June so that is why this site and all of your opinions count so much to me and I’m sure to others. Looks pretty much like a self managed regimen at the moment 😉😁.

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